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I take back the ancient fossil thing - looks like what we're really doing is training for a mission to Mars :alien:. https://news.harvard.edu/gazette/story/2020/06/neurons-that-control-hibernation-like-behavior-are-discovered/ We also have this thread on mouse torpor neurons...

Mainly posting for the irresistible headline :slugish::woot::laugh: Just as I got used to seeing myself as a dauering - is that a word? - nematode I may have to readjust my self-image to prehistoric fossil, or rather to semi-incompetent-at-hibernating prehistoric fossil. Stuff those illness...

I had a look into this because I've had at least one significant demyelination event (not Guillain-Barré syndrome), documented on MRI. The neurologists can't quite agree on what it was but but the favoured explanation seems to be Transverse Myelitis, the same thing they stopped one of the...

This! Really I think NICE should have just left it to you guys to write the guidelines from the start but that not being an option I'm very, very grateful to everyone who's worked/is working so hard at making sure we get the best possible guidelines. Thanks!

I like @Carolyn Wilshire's comment, my bolding:

I think all the publicity came out of the Brain Health Research lecture. I know they were trying to get the press interested at the time but it took a while to catch on. Until it got on breakfast television that is, and then the others had a moment of FOMO or something. Here's another (short)...

Just the ones on TRPM3 and TRPM2 already discussed here on the forum.

The man appears to have achieved a state of omnipresence. Here's yet another article, this one a little bit different from the others which were basically a direct copy-paste of a University of Otago press release. Also has a slightly cringe-making, if largely harmless, American video inserted...

After explaining where the terms ME and CFS had originated Prof Tate actually said, with emphasis, that patients hated the CFS one because it minimised the disease. Doubly disappointing - disrespectful one could argue - that the host continued using CFS after that. Otherwise it was a pretty...

Mostly about validating ME. Part of it was Ritchie (former league star, ANZMES ambassador or something in that line) telling his story. 12 years ill, well the last 4 years. Explained how he was affected and how there was no help for him at the time. A bit too much emphasis on healthy living and...

Also sensitivity to touch? Hard to avoid in a medical setting but at least avoid unnecessary touch like that nurse kindly patting your arm all the time, well-meaning but...

I'm confused about the cohort here. Is it a subgroup from a larger (GWI&CFS&HCs?) study doing double duty? Or a different cohort but they're using data from the larger study as a sort of control? Does the "suggested upregulation of phosphoinositol signaling pathways" (in the conclusion) tie in...

Yes, I picked up on that one, too. Some years ago I participated in a study on face blindness and turns out I am. Just mildly, the least blind of the blind, but definitely face blind. I'd never connected it to ME though. Of course it may have nothing to do with ME. Amongst the millions of pwME...

Ah now @Marky. That would be the nocebo* effect. Deep, deep down in your heart you were worried Ritux wasn't going to work - so of course it didn't. *Nocebo: defined as punishment for cynical souls who refuse to believe in magic, consciously or subconsciously. Expect a publication in a...

Don't know how to answer that. Exactly what is brain fog? I get different types of cognitive difficulties. Do they all fall under brain fog? Most days I can think perfectly fine for a few minutes at a time. After that thinking becomes progressively more difficult. This involves all sorts of...

We've discussed this before somewhere. I have two main issues with the chart: 1) What they call immediate PEM is what I'd call fatiguability. (@Trish) 2) The linear presentation makes it look like the 3 stages follow each other. My experience is that a) I can skip the immediate stage...

Kiwi Covid-19 long-haulers reveal 'heart-breaking' ongoing battles as group feels abandoned by health system https://www.tvnz.co.nz/one-news/new-zealand/kiwi-covid-19-long-haulers-reveal-heart-breaking-ongoing-battles-group-feels-abandoned-health-system May be a case of be careful what you...

I think you're being overly harsh here. The article is not supposed to be an in-depth feature on ME, it's just reporting on an event. Sure there are many more points that could have been mentioned but I think the journalist did ok and managed to stuff quite a lot of information from an 80-minute...

Haven't watched yet but here's the recording:

Again, have to go back to the days when I still did silly things like exerting in hot temperatures. Back then I would sweat, a lot even, but at the wrong time. When walking with a group I'd always be the very last one to start sweating. I'd be very, very hot but not a drop of sweat until...