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  1. Barry

    Abnormal changes during Tilt Table Test in ME/CFS patients are NOT related to deconditioning

    I like the way this disputes earlier research findings, that interpreted lower heart stroke volumes and output as being due to deconditoning, thereby feeding the whole "unhelpful illness beliefs" BPS pantomime. If they are right in saying "The decrease in SVI and CI were similar and not...
  2. Barry

    Stuart Murdoch (of Belle and Sebastian)

    Responses to deleted posts Yes I agree. If ME were an illness where scientists and the medical profession had done everything right by PwME, I don't think anyone would have any problem with someone promoting the benefits of staying positive. My wife certainly strives very hard to stay positive...
  3. Barry

    FOI request re PACE Cost-Effectiveness Analysis

    On the one hand I agree with @Dolphin that retraction might lead to a useful paper being "lost" to further studies, but I also see that there is a point of principle here, and we cannot really be asking for retraction of other ME/CFS research due to ethical oversights, yet skipping ethical...
  4. Barry

    FOI request re PACE Cost-Effectiveness Analysis

    If you save it first then it can be opened from disc. I had the same problem.
  5. Barry

    Article: Verywell: Exercise for Fibromyalgia and Chronic Fatigue Syndrome

    My wife is mild/moderate, and the idea of doing extra exercise to improve fitness is a complete non-starter. She pushes herself hard to her limits, and it is much more about doing us much "normal living" exercise as she can manage, whilst avoiding severely degraded fitness. I think my wife is...
  6. Barry

    Article/personal account: My Wife isn't Tired

    I can empathize with this a lot, given it is my wife who has had ME over 10 years now. When we first found out and saw a specialist, we were completely in his hands, and believed all he said and recommended. Thankfully he was very aware I think, and advised my wife she was already doing all the...
  7. Barry

    Which Cochrane Review Group?

    Up until now it seems there has been - just follow the BPS line and classify everything and anything not yet understood as a mental disorder. Suits money-conscious politicians, empire building psychiatrists aiming to please politicians, etc.
  8. Barry

    Wesselys Mental Health review could also replace Mental Capacity Act

    I suspect political influence very much extends to "assisting" their chosen favourites to take up influential positions in politicians' chosen organisations.
  9. Barry

    Which Cochrane Review Group?

    Given that so little is still known about ME, it is probably easier to identify the groups / sub-groups that ME does not belong to, than precisely where it does belong. One thing is absolutely for certain though: ME does not belong in Common Mental Disorders! That alone illustrates everything...
  10. Barry

    Retraction Watch: Journals are failing to address duplication in the literature, says a new study

    "self-plagiarism" is an interesting term, and is akin to what so many of the BPS club do; cite their own and close colleagues' work to give the impression of independent validation.
  11. Barry

    Which Cochrane Review Group?

    No, I've been keeping a weather eye open. I suppose it's possible they did make a decision by end 2018, but just not got around to publishing it yet. Maybe.
  12. Barry

    Wesselys Mental Health review could also replace Mental Capacity Act

    Hardly surprising, given that Wessely's behaviour always comes across as that of a highly ambitious political animal first and foremost, with everything else secondary to that. I doubt people reach such politically influential positions unless those in power are confident they are highly...
  13. Barry

    A general thread on the PACE trial!

    [My bold] I cannot claim to understand all the fine detail of this, but ... What was different about the first 3 at each centre? From the link you supplied, it seems clear that stratified randomisation relies on researchers understanding the implications of potential bias. But that could cut...
  14. Barry

    Their pain is real – and for patients with mystery illnesses, help is coming from an unexpected source

    Clearly you are right, and is of course what I was saying. Such extrapolation is akin to convincing yourself a field is perfectly flat, and then presuming the earth is therefore flat also ... now where have I heard that before?
  15. Barry

    A general thread on the PACE trial!

    For a trial such as PACE what is the formal process for randomisation of participants, and how is it recorded and audited? At what stage is it done? Are the processes of recruitment and randomisation going on in parallel? Or can randomisation only be done once all participants have been...
  16. Barry

    Their pain is real – and for patients with mystery illnesses, help is coming from an unexpected source

    I would have thought that if one looks at such things from a systems perspective, there will inevitably be very rare cases where the part of the system that develops a fault may be the mental processing part - which is a crucial part of the overall system. I think that statistically it is going...
  17. Barry

    Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway…, 2014, Bakken+

    This could be something where the big-data research approach might turn up a correlation or two to investigate further, maybe identifying some unexpected possibilities.
  18. Barry

    The Psychologist: "Does psychology face an exaggeration crisis?", article by Brian Hughes

    An interesting cautionary perspective here ... 5 "Don'ts" of Practicing Gratitude https://www.psychologytoday.com/gb/blog/between-you-and-me/201303/5-donts-practicing-gratitude?collection=152996
  19. Barry

    David Tuller: Trial By Error: Australian Draft Report Seeks Comment

    Excellent, as always. Given it was an Australian whose courage and determination has enabled so much progress over the last couple of years, wouldn't it be good if this Australian advisory committee could truly do right by PwME. Another chance to set a great example.
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