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Dear @Colleen Steckel, I am not sure I can put it better than @strategist does: It appears that you are interpreting this as a failure by the IOM report to acknowledge the reality of ME (because you're not familiar with reviewing and interpreting scientific evidence). For a condition like...

Dear @Colleen Steckel, I am not sure I can put it better than @strategist does: It appears that you are interpreting this as a failure by the IOM report to acknowledge the reality of ME (because you're not familiar with reviewing and interpreting scientific evidence). For a condition like...

None of the brain studies we have so far has been satisfactorily replicated and a number of them are pointing in opposite directions (reduced blood flow vs cell activation for instance). Even if one took all these studies at face value it would be impossible to make any consistent sense of what...

I have not watched but I suspect it is more on target. But I would not rule out my asking some pretty annoying questions there too. Like why don't your graphs have proper legends for the axes and variance indicators! Where was that methods slide...

Cognitive dysfunction, sensitivity to light and sound principally. Being a disorder of the nervous system does not exclude qualifying for another category. MS is a disorder of the nervous system and an immunological disorder for instance. One could argue that it is not clear that anatomically...

That was very much my feeling.

I discuss the detailed situation with immune abnormalities in ME with Jo Cambridge in the lab on a more or less weekly basis. None of these findings has held up so far. There are some new findings in MAIT cells and B cells that again need replicating but the ones in the literature have failed to...

A disorder of the nervous system does not have to have brain inflammation. There are lots of disorders of the nervous system without inflammation. Most of them have some other identifiable pathology but that is irrelevant. We know ME is a disorder of the nervous system because of the symptoms...

I thought this year that maybe I should let CMRC heal its wounds and spare them my annoying questions. But next year ... The level needs to go up two gears on the left handlebar and then another two on the right. People who speak drivel should leave the podium shaking in their boots. That was...

All the haemophiliacs in the UK who got AIDS and Hep C from blood products even after it was known there might be a problem.

I think an answer is needed for this one.

I agree. Someone seriously interested in the topic should be posting on S4ME, not treating it like a peep show. After all, it's not that hard to do!!

This is quack garbage Robert. What would be the point of sequencing all the RNA in your stool? You might as well sequence the RNA in your front garden flower beds. Or measure all the trainer shoe sizes in a landfill. Even if the microbiome mattered to disease, which I doubt, this would be a...

None that I know of. These tweets remind me of London Borough of Barnet Refuse Collection Department. They have stickers that in effect say 'however awful a mess you are in we are determined to persuade you that we are doing a brilliant job to look after your interests'. (We even have people...

This makes sense to me, but I am a bit more optimistic. CCC is probably not ideal for clinical classification but I think the IOM proposal at least indicates a fresh look with PEM as a focus. My impression from talking to scientists in the UK (as apposed to babblers of various sorts) is that CCC...

This thread has been split from here. As issues were quite intertwined, a number of posts have been copied. In copied posts, text not related to this topic has been greyed. This makes sense to me, but I am a bit more optimistic. CCC is probably not ideal for clinical classification but I...

Does anyone know what this means? 'including leaving work well if they are too ill to continue'

But people on S4ME are not so dumb, so all is not lost.

Because they are dumb, @Sasha. The sad reality is that most people in charge in science are dumb.

The crucial breakthrough in treatment of malignant diseases of the immune system (leukaemia, lymphomas) came when it was understood that complete removal of diseased cell clones could be achieved with combinations of drugs leading to long term cure. The target is relatively easy to understand...