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  1. adambeyoncelowe

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Interestingly, some papers have still run the headline SW warns against.
  2. adambeyoncelowe

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Try this link instead (if you don't want to give them the hits): http://web.archive.org/web/http://www.sciencemediacentre.org/expert-reaction-to-study-investigating-a-potential-biomarker-for-chronic-fatigue-syndrome-me/
  3. adambeyoncelowe

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    From Reuters. The second part seems irrelevant to me. Even if it's measuring a consequence of the illness, rather than its cause, it can still be a biomarker? ETA: It's SW commenting.
  4. adambeyoncelowe

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    More news: https://medicalxpress.com/news/2019-04-biomarker-chronic-fatigue-syndrome.amp By Miriam E. Tucker: https://www.medscape.com/viewarticle/912336 With lots of quotes from experts: https://www.sfchronicle.com/bayarea/amp/Stanford-discovery-validates-chronic-fatigue-13804385.php Over in...
  5. adambeyoncelowe

    UK: Locations that offer CPET/VO2max testing

    The ones I sent above were helpful but it made the testing centre focus only on VO2max. It was actually my heart rate that dropped on the second day (it wouldn't reach the same level as the day before). Ideally, you're looking for drops of more than 12% in any one measure, I think. ETA: I...
  6. adambeyoncelowe

    MS society question people on the streets to ask what they know about MS

    There are mailing agencies that will do this for you. Going door to door in one or more postcode areas to deliver leaflets.
  7. adambeyoncelowe

    #MEAction: "Unseen: Black people living with ME"

    This study supposedly claims that patients are more likely to be white, although I can't see that in the abstract: https://www.ncbi.nlm.nih.gov/pubmed/12562565 It's one of the references here: https://academic.oup.com/ije/article/38/6/1554/668115
  8. adambeyoncelowe

    Dr. Ron Davis of Stanford - Research Update - Drug Screening. Video from Emerge Symposium March 2019, Australia

    This is all really interesting. I'm not getting my hopes up, but it would be great to see how this pans out.
  9. adambeyoncelowe

    #MEAction: "Unseen: Black people living with ME"

    Exactly this. If we don't hear different voices, that in itself is exclusive.
  10. adambeyoncelowe

    #MEAction: "Unseen: Black people living with ME"

    It's not 'identity politics'. It's people's lives.
  11. adambeyoncelowe

    #MEAction: "Unseen: Black people living with ME"

    With all due respect, this isn't an 'invented problem' (and the issue goes beyond stock images). I'm in the #MEAction Black Forum group on Facebook and people have raised some very specific instances where race and ethnicity have been major barriers for them both inside and outside the ME...
  12. adambeyoncelowe

    #MEAction: Toxic Masculinity Made my ME Much More Punishing

    I intentionally didn't reply to anyone in particular. I meant 'you' in the open sense, rather than specifically in response to one person. 'One' would have been clearer, but perhaps more pretentious. As for whether we should bring politics into the ME community... It's unrealistic to expect no...
  13. adambeyoncelowe

    #MEAction: Toxic Masculinity Made my ME Much More Punishing

    Personally, I have no problem with it. It's his individual perspective, and I do see many men who struggle with things on their own because they're encouraged to toughen up and not talk about things. It might not be your experience described in the article, but it doesn't invalidate his...
  14. adambeyoncelowe

    Updates on status of ICD-11 and changes to other classification and terminology systems

    I'm not sure if that's something NICE would consider relevant. The scope, as published, doesn't really consider categorisation or coding. It's about treatment and diagnosis.
  15. adambeyoncelowe

    Jamie Strong, a member of Karl Morten's team at Oxford, nominated for the National Diversity Awards

    So the voting must help with shortlisting, and then the judges pick the final winners? I can't imagine they'd leave it entirely to popularity.
  16. adambeyoncelowe

    Jamie Strong, a member of Karl Morten's team at Oxford, nominated for the National Diversity Awards

    Oh that's interesting. I assumed there was a panel who decided the final winners. He better get tweeting then?
  17. adambeyoncelowe

    Jamie Strong, a member of Karl Morten's team at Oxford, nominated for the National Diversity Awards

    Oh, this is just how the awards work. I know a few people who've won or been nominated. Think of it as voting to shortlist, rather than voting to win outright. The public can nominate literally anyone, so they balance that out by requiring people to vote for nominees. That way, only people with...
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