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  1. adambeyoncelowe

    Flushing in hands and feet

    I get very hot legs at night and cold hands and feet in the daytime. Sounds familiar.
  2. adambeyoncelowe

    Ketogenic diet

    You're right, actually. I'm thinking of my friend, and I think she just breaks that rule because it's so hard. Bad memory!
  3. adambeyoncelowe

    Ketogenic diet

    I don't think that definition works. People often starve themselves voluntarily--for politics, mental health or other reasons--and fasting doesn't usually involve total denial of sustenance. Intermittent fasting, for example, is eating all your meals within, say, a four-hour period and then...
  4. adambeyoncelowe

    An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS Patients Missailidis et al. 2019

    Perhaps compensatory mechanisms manage to even things out on day one, and then they fail by the time day two comes around. Or maybe it is indeed something different, and the second day results show a failure of sleep to clear away the improper signalling so that the effects are cumulative the...
  5. adambeyoncelowe

    The ME Patient Foundation

    This also suggests it could have been under the requirement not to overextend itself.
  6. adambeyoncelowe

    The ME Patient Foundation

    I believe that as soon as the board drops below a certain number of people (maybe three in this case?), the organisation is dissolved. Another charity I know had to stop trustees resigning so that it didn't immediately dissolve but it might have been that all the trustees were resigning...
  7. adambeyoncelowe

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I had clocked it but it's good to be reminded. Our next meeting is on Thursday, so it's good to be refreshed! Thank you.
  8. adambeyoncelowe

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    Yes, that's right. With the caveat that Tom's post is also right (some things get lost, so it doesn't just have to be patient surveys sent in).
  9. adambeyoncelowe

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    The agenda is confidential until the minutes are published. But tag us in things here and we will see them (to be fair, I've already clocked everything you've suggested in this thread anyway, but it's better to be safe than sorry). At least three lay members use this forum. Not to sound...
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