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I addressed this above: The CDC and FDA say there are no treatments. The NIH and American healthcare guidelines both reject all research based on Oxford and PACE played no role in the IOM report.

How about then: Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. Questions have been raised about the independence of both the trial steering committee and the peer-review, and the speed with which the main paper was fast-tracked by The Lancet...

I agree we shouldn't overstate, but I don't think we should be overcautious either. The reanalysis didn't find any evidence. The CDC and FDA say there are no treatments. The NIH and American healthcare guidelines both reject all research based on Oxford and PACE played no role in the IOM report.

Could leave that out then. Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. Questions have been raised about the independence of both the trial steering committee and the peer-review, and the speed with which the main paper was fast-tracked by...

I think Tom is right. How about a shortened version: Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. Questions have been raised about the independence of both the trial steering committee and the peer-review, and the speed with which the main...

I hadn't realized her KCL connection. I think that must have played a role. I also think we're seeing how the system works once a trial has been conducted and published: everything then swing in its favour as all the institutions involved have a massive interest in defending it, not least the...

How about this @Jonathan Edwards and others? Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. The trial steering committee contained members with a financial interest in the outcome of the trial and several others with an allegiance to the model...

Published this morning: CHRONIC FATIGUE Sir, Further to your report “Call for review of ‘flawed’ ME research”(Aug 21), as funders of the Pace trial we reject the view that the scientific evidence provided by the trial for using cognitive behavioural theory and managed exercise in the...

Thanks, Barry. We've had an exchange of submissions and responses and there's nothing now until the hearing. I am preparing things at the moment and if I need help, I'll ask. Appreciate the offer.

A further thought on this, David. As some know, the Tribunal hearing for my appeal for more trial data is on 13th November. I have been briefing Tom Whipple on it and he has shown interest. I suspect he may run something on the Tribunal decision when it eventually comes. That may be a good time...

OK, Dave, I'll do what I can. Some good ideas from others about to ask patients to contact their MPs. I think if they do, including the Whipple article (or a link to it) may help. As for a letter to The Times, as a daily reader I know they do regularly print letter with a mass of signatories...

I think that's a good idea. Also @dave30th if you want more MPs to sign the letter, I'd be happy to try. They're normally very keen to sign things (eg Early Day Motions) as it's an easy way for them to do some virtue-signalling to their constituents. I'm pretty sure the one I was in contact with...

I'm with @Jonathan Edwards on this. I also think it's unhelpful to lump ME together with other illnesses. It reeks too much of MUS to me. I don't have comorbidities. I have sympathy for those patients who do and hope they get the help they need for them. I also have sympathy for patients who...

Thanks, Andy.

I asked the same questions to the MRC. They responded today saying they have now updated their website with that information. It's available here https://mrc.ukri.org/funding/science-areas/population-systems-medicine/our-science-and-contacts-psmb/cfsme/ Under 'MRC-funded research projects'...

1. There may be. I suppose PubMed may be a good place to start. 2. Oops, yes, that was a typo in my request in fact. Oh well, they understood.

Good idea. Here is the question: To ask the Secretary of State for Health and Social Care, how much funding from the public purse he plans to allocate to biomedical research into Myalgic Encephalomyelitis in the current financial year...

I thought it would be interesting to see which studies were included in the spending on ME in Dinenage's reply to Carol Monaghan's written question. I asked: The Answer states the NIH funding by the Biomedical Research Centres and Units was as follows: 2014-15 280,442; 2015-16 295,626; 2016-17...

I have today received the decision notice rejecting my appeal to the ICO for the release of the data. I shall be appealing to the FTT. For obvious reasons, I don't want to say too much but two things stand out to me: First, the decision says information for school attendance, fatigue and...

If I may make another suggestion: the poll should not pit one idea against another but should offer members the chance to support more than one idea. Perhaps the question could be more along the lines of 'Do you think this is a good suggestion?' and then a follow-up of 'Should this be be High...