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Thanks, Andy, I thought it likely that something similar had been done before, though I didn't see one in a quick search. I think it would be good if there could be some sort of briefing done for Ponting. I also think it would be worth splitting any survey/poll in two, as responses seem to fit...

It's interesting what you say, Barry. My experience has been that URT viruses (of which GF is one of course) have been the worst culprits. There is a long history suggesting some sort of connection between GF and ME. I also think that when I was growing up and was told someone had 'chronic GF'...

This is what I find so frustrating. White, Wessely, Chalder, Crawley, etc all take the illness seriously and have found ways to help some people manage the effects of their symptoms. That is not negligible. If only only they'd stopped there then they would have done some good. They have always...

I would really like to keep this thread to proposed research if possible.

OK, so what research do you want to see?

My own suggestion: Current research seems to focus on finding a biomarker: looking at what is going wrong with ME patients and then hoping this will explain the process and in time a way of fixing things Even the best modern techniques do not reveal everything that happens in the body. As...

This may be done elsewhere on the site, but I thought it would be interesting to see what research patients would like to see. Perhaps if there is enough then we could do some sort of briefing paper with ideas for Chris Ponting.

Hehe. Brilliant.

Yes, that's right. I hate the deceit: 'Yes, your illness is real.' But then we think hysteria is a real illness. 'Yes, it's triggered by a virus.' And by 'trauma' and anything else come to think of it. 'Yes, it's physical and there are physiological changes.' But we're not dualists and...

This was apparently in the @Action for M.E. journal earlier this year. https://www.metrust.org.uk/2018/07/06/article-by-dr-paul-worthley-in-interaction-magazine/ I don't know anything about Worthley or the ME Trust, though I see Countess of Mar is a Patron. It reads to me as very similar to...

I think he's up to date with things.

I don't. As discussed elsewhere, I am not alone in thinking ME is likely more than one illness. I can only then speak for myself, but 'homeostasis out of control' means absolutely nothing to me. The whole article, to me, is utter gibberish.

I have hacked my way though this turgid nonsense. It is quite extraordinarily awful. It reminds me of two things: one is an explanation of acupuncture I once read; the other is the film Europa Europa (1990) and the explanation for racial superiority. Have a false idea and then build a complex...

Think this paper gives a good description of the experience of being chronically ill. https://www.researchgate.net/publication/325976771_The_Importance_of_Screening_for_Suicide_Risk_in_Chronic_Invisible_Illness

Odd. Loads OK still for me.

I was poking around on the Bristol Uni site today and noticed that they're flogging Fitnet with Crawley's TEDx talk. https://www.bristol.ac.uk/ccah/research/childdevelopmentdisability/chronic-fatigue/fitnet-nhs/faq/

Strudwick was 'cured of ME' by the LP and wrote an awful, damaging article in The Times about it. He's not an ally. https://www.thetimes.co.uk/article/me-lightning-cure-or-a-flash-in-the-pan-87cq3kktkwn

Oh, I thought that all sounded very familiar. She'd a 'Spiked' bully. Yawn. It could have been written by Fox. Oh, maybe it was. http://www.spiked-online.com/newsite/author/Julian%20Vigo

He was Anthony Johnson. I don't think he disappeared. He did leave the MRC in 2014. As 'only the statistician' it's true he wouldn't normally be expected to be involved with the publicity surrounding the paper. However, since he was the statistician and so much criticism has centred on the...