Search results

Confirms she has not read a damn thing about ME, remains completely oblivious to the entire issue. Doesn't stop her from talking about it, though. This is completely inexcusable, we have literally been giving her all that information for months. This is worse than feigned ignorance, she cannot...

Powerful people? Always vague, never actually being up-front about what they mean, leaving the imagination to do the rest.

I always find it weird when people still trot out Pavlov. Dogs are smart. Dogs can learn. That's not conditioning, that's just learning that when the guy rings a bell there's food incoming. Smart dogs get that. Don't need to be a conditioned robot for that to happen. Hell the entire food...

Reading Gerada's thread I'm getting really creepy vibes about the culture of UK medicine. Same with Greenhalgh. Everyone is just plain sucking up to them, showering them with praise despite not even knowing what is being discussed. It's seriously creepy. Reminds me of corporate boards where a...

Some "lived experience" counts more than others. To be more precise, the lived experience of millions is irrelevant, the experience of those two supersedes them all because it's good for their self-interest. Gerada has spent years demonizing our lived experience. And here she shamelessly says this.

Akrami is also the lead author of the 2nd Body Politic report published a few weeks ago. Also it's weird seeing this framing from Gerada: "isn't it worrying?". No, it isn't. Why would it? Obviously it worries her as it threatens this power couple's future. That's certainly a worry they have, if...

Weird how they make no mention that Sir Simon Wessely is famous in large part because he solved post-viral fatigue syndrome when quoted on an article about this very topic. No mention that he has famously developed safe and effective treatments for it, commonly used in standard clinical practice...

Ethical. Unethical. Is there really a difference when you think about it? What's ethical for one is unethical for another. What is even harm? If a patient is harmed and medicine doesn't believe it, well, they weren't really harmed and so it's perfectly ethical to be unethical. Clearly the...

I don't know much but noticed that many with Long Covid had such seizures without any of the expected findings on EEG. They seem to mostly diminish with time, but it's definitely one of the rarer outcomes so hard to say. So a pretty decent chance that they are a less common consequence of...

For those blocked (you can still see the tweets in private browsing mode): almost no one finds it useful. I think I saw 2 who basically said the only useful advice is pacing but that better advice was available elsewhere. But yeah having purged everyone who doesn't treat her word as gospel...

She wants to speak about us, with real life implications, without having to be told that she does not understand a damn thing about ME. That's the list: people who choose to have an impact on our lives but do not want to be accountable for it. She wants to speak and for everyone to listen and...

This is exactly what people mean by lies, damn lies and statistics. Fiddling with GIGO data in blatantly biased ways is lying just the same. It's not even lying with a few extra steps, it's lies on top of lies, lies all the way down. What is the overlap between the angels dancing on hairpins'...

And all they're describing is standard practice for chronic illness. Which isn't hard to understand because we describe the same thing. So it's not as if any of this should be surprising, given that it's very common and has been openly controversial for decades. The denigration is one thing...

Running thread on this call, includes slides: The full presentation: https://emergency.cdc.gov/coca/ppt/2021/012821_slide.pdf. Not much to show for now. Interesting to see the same findings on white matter. Otherwise this is far too diverse to pin. Interesting to see the note on one slide...

One consolation is that they are way too heavy-handed and moving too fast at once. Going to promote a N=1 anecdote after just a few weeks on national television like this takes all the subtlety of the years-long approach they took with us. Which is interesting because although they go to...

I assume this will lead to a story. Look at all those "MUS"es and "FND"s, at least according to their definitions. Does not seem to give anyone pause, it's all so easy to say that for some it's medically explained and for others it isn't based simply on a positive test. Talk about having strong...

Obviously invoking the patient's "right to privacy" as a cover for denying his right to liberty is complete BS. The best recourse would be to sign it away so they can't use it as an excuse.

Notice how literally none of this is about the patient, quality of life or other things. It's entirely centered on the health care system or how expensive the patients are. Even the physicians' "distress", by which they mean minor discomfort, is held above ours, even though what is considered...

A "team from Kings College London and London Metropolitan University" that happens to include the inventor and owner of the trademark. Yes, totally legit. It's really shocking that this is allowed and seen as perfectly normal, that the review was published seriously despite being written by...

It's something, isn't it? What is described here as a horrible experience, as something clearly wrong, misguided and causing serious harm, is literally standard treatment for chronic illness, which Greenhalgh proudly supports in full and no doubt many of those physicians applied many times in...