Trisha Greenhalgh on ME/CFS and Long Covid

I was referring to the "hit list" which TG claims exists with her name on it:
A bunch of single-issue campaigners. The irony is, I sympathise with their issue but I don't agree with *everything* they say. So I am on a hit list.
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I'm a little annoyed that nobody told me about this list, especially as I'm on the committee and I like a good argument. If we're having a coordinated campaign of online abuse of those who are trying to help us I'd like to be kept in the loop.
 
TiredSam said:
I was referring to the "hit list" which TG claims exists with her name on it:

I'm a little annoyed that nobody told me about this list, especially as I'm on the committee and I like a good argument. If we're having a coordinated campaign of online abuse of those who are trying to help us I'd like to be kept in the loop.
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Oh, I see! Maybe I'm on it too?

My mum used to be on neo-Nazi group Kombat 18's 'red list' of 'dangerous socialists' or somesuch, so I'm not too worried about any hit list held by anyone else.
 
TiredSam said:
Where is this "hit list" of ours by the way? You'd think somebody would have told me.
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She wants to speak about us, with real life implications, without having to be told that she does not understand a damn thing about ME. That's the list: people who choose to have an impact on our lives but do not want to be accountable for it. She wants to speak and for everyone to listen and accept her opinion as fact.

I swear these people genuinely do not understand that their words and actions have real life consequences. They act as if the worst that happens is some people are upset, not understanding any of the consequences they create: people dying, being ostracized from their family and community, people being denied financial support they need to survive. This is complete abstract to them, they do not understand there are millions of lives beneath their urge to spew their ignorant opinion. They only ever perceive it based on how it affects them.
 
MSEsperanza said:

Code: 
https://twitter.com/trishgreenhalgh/status/1354795972434534403

Ethics in place to recruit from Twitter.

Hm.
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For those blocked (you can still see the tweets in private browsing mode): almost no one finds it useful. I think I saw 2 who basically said the only useful advice is pacing but that better advice was available elsewhere.

But yeah having purged everyone who doesn't treat her word as gospel truth, this is how an echo chamber operates. Selective reporting on cherry-picked data from carefully selected anecdotes. Literally how not to science.
 
rvallee said:
She wants to speak about us, with real life implications, without having to be told that she does not understand a damn thing about ME. That's the list: people who choose to have an impact on our lives but do not want to be accountable for it. She wants to speak and for everyone to listen and accept her opinion as fact.
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On reflection I don't believe there is such a list. Her use of the phrase "hit list" is a manipulative way of making us sound like we can be bothered to compile such a list and act on it. It's a lie, and she told it. It's just a way of constructing the tried and tested militant activist narrative which her ilk are so fond of. We don't hit anyone, we don't have a list. She's lying and joining those of her colleagues who have also taken part in the disgraceful smear campaign they always trot out against us as a smokescreen to avoid all and any scrutiny or criticism, which they regard as an affront.
 
TiredSam said:
On reflection I don't believe there is such a list. Her use of the phrase "hit list" is a manipulative way of making us sound like we can be bothered to compile such a list and act on it. It's a lie, and she told it. It's just a way of constructing the tried and tested militant activist narrative which her ilk are so fond of. We don't hit anyone, we don't have a list. She's lying and joining those of her colleagues who have also taken part in the disgraceful smear campaign they always trot out against us as a smokescreen to avoid all and any scrutiny or criticism, which they regard as an affront.
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Yes, we all recite the names of BPS proponents before we go to sleep at night, à la Arya Stark.

[In case any journalists are reading this: I would like to clarify that this is sarcasm.]
 
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TiredSam said:
On reflection I don't believe there is such a list. Her use of the phrase "hit list" is a manipulative way of making us sound like we can be bothered to compile such a list and act on it. It's a lie, and she told it. It's just a way of constructing the tried and tested militant activist narrative which her ilk are so fond of. We don't hit anyone, we don't have a list. She's lying and joining those of her colleagues who have also taken part in the disgraceful smear campaign they always trot out against us as a smokescreen to avoid all and any scrutiny or criticism, which they regard as an affront.
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It's an excuse to instigate a policy of shutting people up who disagree with her. I find it unprofessional, unbecoming, manipulative, unethical and deeply unhealthy.
 
With regard to TG twitter blocking I'm becoming a bit more concerned about the ethics approval that was given the green light as suggested in a previous post.

Securing ethics approval to recruit trial participants and then blocking people wholesale is subverting the process. (Provided that I am understanding what was said correctly and this is what happened).
 
Some "lived experience" counts more than others. To be more precise, the lived experience of millions is irrelevant, the experience of those two supersedes them all because it's good for their self-interest.

Gerada has spent years demonizing our lived experience. And here she shamelessly says this.

 
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