I once followed up that quote and it seemed to have been directed at J Gordon Parish.
Those familiar with Osler's Web will recall that Parish was also treated with disdain at the Holme's conference discussing the criteria for CFS. He did not deserve this treatment.
EDIT added omitted word
If he (or she) were a true CFS/ME researcher he/she should feel able to shrug off the criticism as due to dysfunctional cognitions and maladaptive behaviour.
I have recently unearthed some of the advice given by the MEA and ME Action Campaign in the early late 1980's/early 1990's. The only significant difference between Pacing and GET seems to be that Pacing involved giving the sufferer the confidence to listen to their own body and stop when it told...
Winarick, who may or may not be a scientifically valid construct, appears to be concerned with matters of form rather than substance. People diagnosed with CFS, whatever the validity of the scientific construct, do not have the capacity to work restored by CBT.
That would appear to be merely an expression of the limitations of his/her experience and all the more reason to rely upon the professional opinions provided rather than his/her own inadequate opinion.
"what's really important
and something that occasion gets lost in
mus is that the symptoms the patient's
experiencing are absolutely 100% real to
them they are frequently distressing an
anxiety inducing both to them their
family and indeed the clinical team who
treats them"
he seems to be...
I recently saw that in 1988 Melvin Ramsay sent a questionnaire to staff involved in in the 1955 outbreak. Apparently approximately 75% reported that they were still suffering effects, many of them severely.
Still, I suppose this report did not have the benefit of the peer review which M and B...
What is meant by "funds the infrastructure", as that is apparently what the NIHR does with the JLI. That looks as though it is only a proportion of total running costs. Is it clear whether there is other additional funding and, if so, its source?
Where a parent to behave in a way which caused continual harm to a child's health, whatever he motive, they would be at risk of reference to social services. Only doctors have that right apparently. Whatever happened to professional regulation?
My wife made a serious tactical mistake today. She asked if I wanted to look at some papers before she threw them out. It was an old ME file-newer things are long gone. It looks like I was diagnosed, and joined the ME Association in 1985. There is a variety of old information sheets and...
It seems reasonable to assess psychosocial conditions arising from the illness. It is only when it is suggested that psychosocial factors are the cause of the perpetuation of symptoms that we should worry. Or have I been misunderstanding something?
It's a shame they didn't consider the lessons to be learned from the study of the Asian Flu epidemic. What we were always assured was the best quality science because it was a prospective and not retrospective study. The one where Fauci supported Strauss over his applying the findings to CFS...
One is forced to wonder whether Helen Nicholls has considered the corollary of her argument.
Everyone should be required to undertake GET because it works for her.
Allegedly.
I don't know whether I should contribute to the answers to the question on anxiety in case it is not strictly on topic, but here goes. The Wessely /Powell paper from 1989 is of interest because they appeared to conclude that something like a quarter of the trial subjects, I forget the exact...
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