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    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    Is that a clinical review of the patients, or a managerial review of the staff?
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I once followed up that quote and it seemed to have been directed at J Gordon Parish. Those familiar with Osler's Web will recall that Parish was also treated with disdain at the Holme's conference discussing the criteria for CFS. He did not deserve this treatment. EDIT added omitted word
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    Who is Simon Wessely?

    If he (or she) were a true CFS/ME researcher he/she should feel able to shrug off the criticism as due to dysfunctional cognitions and maladaptive behaviour.
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    United Kingdom: ME/CFS in The Times (including Sean O'Neill)

    I have recently unearthed some of the advice given by the MEA and ME Action Campaign in the early late 1980's/early 1990's. The only significant difference between Pacing and GET seems to be that Pacing involved giving the sufferer the confidence to listen to their own body and stop when it told...
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    Graded exercise therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, 2020, Vink & Vink-Niese

    Winarick, who may or may not be a scientifically valid construct, appears to be concerned with matters of form rather than substance. People diagnosed with CFS, whatever the validity of the scientific construct, do not have the capacity to work restored by CBT.
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    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    That would appear to be merely an expression of the limitations of his/her experience and all the more reason to rely upon the professional opinions provided rather than his/her own inadequate opinion.
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    Medically Unexplained Symptoms and PEM (Paediatric Emergency Medicine) presentations - Dr Armstrong - 11 Jun 2020

    "what's really important and something that occasion gets lost in mus is that the symptoms the patient's experiencing are absolutely 100% real to them they are frequently distressing an anxiety inducing both to them their family and indeed the clinical team who treats them" he seems to be...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I recently saw that in 1988 Melvin Ramsay sent a questionnaire to staff involved in in the 1955 outbreak. Apparently approximately 75% reported that they were still suffering effects, many of them severely. Still, I suppose this report did not have the benefit of the peer review which M and B...
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    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    What is meant by "funds the infrastructure", as that is apparently what the NIHR does with the JLI. That looks as though it is only a proportion of total running costs. Is it clear whether there is other additional funding and, if so, its source?
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Has research ever been conducted to ascertain whether it is, in fact, possible to teach old dogs new tricks?
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    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    Where a parent to behave in a way which caused continual harm to a child's health, whatever he motive, they would be at risk of reference to social services. Only doctors have that right apparently. Whatever happened to professional regulation?
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    Who was it that said being in support groups leads to poor outcome?

    No. I may be daft, but I'm not that daft. It will come to me. I'm sure SW referred to the book I'm thinking of in his 1997 tome.
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    Who was it that said being in support groups leads to poor outcome?

    It's a Mary Sullivan. I thought she had written a book, but I cannot find a reference and may have dreamt that.
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    Who was it that said being in support groups leads to poor outcome?

    My wife made a serious tactical mistake today. She asked if I wanted to look at some papers before she threw them out. It was an old ME file-newer things are long gone. It looks like I was diagnosed, and joined the ME Association in 1985. There is a variety of old information sheets and...
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    Research underway related to Long Covid

    It seems reasonable to assess psychosocial conditions arising from the illness. It is only when it is suggested that psychosocial factors are the cause of the perpetuation of symptoms that we should worry. Or have I been misunderstanding something?
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    Simplytreatment -U.K.

    Do they provide a free bag to go with the shopping list? I think we should be told.
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    Post-viral fatigue and COVID-19: lessons from past epidemics, 2020, Islam, Cotler and Jason

    It's a shame they didn't consider the lessons to be learned from the study of the Asian Flu epidemic. What we were always assured was the best quality science because it was a prospective and not retrospective study. The one where Fauci supported Strauss over his applying the findings to CFS...
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    United Kingdom: ME/CFS in The Times (including Sean O'Neill)

    One is forced to wonder whether Helen Nicholls has considered the corollary of her argument. Everyone should be required to undertake GET because it works for her. Allegedly.
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    The Times: Infectious diseases expert warns of spike in ME cases

    I don't know whether I should contribute to the answers to the question on anxiety in case it is not strictly on topic, but here goes. The Wessely /Powell paper from 1989 is of interest because they appeared to conclude that something like a quarter of the trial subjects, I forget the exact...
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