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If the problem with the ICC is that it specifies too many symptoms - apparently thus capturing people with a primary psychiatric disorder because they will assert most every symptom in the book - I don't see how the solution to that problem is to use a criteria that lists fewer symptoms (like...

Took me a while to think of this, but... "Loss of agency" "Stripped of agency" https://en.wikipedia.org/wiki/Agency_(sociology)

Well, looks like we won't be seeing a paper on hubris coming from him anytime soon.

If I understood this right, he thinks there is a single underlying mechanism that is capable of producing different symptoms in different patients. He also mentioned seeing different (genetic) mutations in different patients. I may be wrong, but it sounds kind of like the underlying mechanism...

This concept sounds somewhat similar to something done in Alcoholics Anonymous where people known as "sponsors" help to keep recovering alcoholics on the right track. The difference would be that, unlike the healthy member of a couple, AA sponsors have themselves followed a program of recovery...

Could have been worse... They might have asked patients to listen to this. :eek:

Have the inherent risks of shopping bag research taught us nothing?

The incredibly "useful," but wrong, Ptolemaic world system was so accurate (it was just as good at matching and predicting observations as the later Copernican system) that it managed to hold science back for 1500 years.

The estimate of 800,000 US cases is based on Leonard Jason's 1999 study. He found a 0.422% prevalence rate (95% confidence interval, 0.29%-0.56%) and applied it to the US adult population in 1997 (the actual figure was 836,000). However, the US adult population has increased since 1997, and so...

I think it has something to do with PACE being a thing of beauty, like an ocean liner, or something like that. [Note: No one perished in the incident below.]

I'm still reeling from the recent study that shows (as I've long suspected) that hand dryers in public restrooms are blowing bacteria all over your hands. :eek...

Well, given that the surface of the Earth is 510.1 trillion square meters, that's 408,080,000,000,000,000,000,000 (408.08 sextillion) viruses falling per day - or 53.7 trillion viruses per person. The HIV-1 virus weighs 1x10^-18 kg. If that was the average weight of all those viruses, about...

My mind just imploded... :)

Good find! I was going by the 1990 Ramsay paper cited by Twisk. It mentions "a complaint of general or local muscular fatigue following minimal exertion with prolonged recovery time," but doesn't mention other post-exertional symptoms that one might associate with PEM. It also doesn't mention...

Well, if the person in this study could effectively recover from severe, enforced deconditioning in just a couple of weeks, I'd say the six month long PACE trial results pretty much prove that deconditioning is not the proximate cause of ME.

So, they're not the same, except when they are. The definitions are different but not mutually exclusive. Post exertional malaise, for example, may fulfill a requirement for the 1994 CFS definition, but it is not mentioned in Ramsay's 1990 ME definition. I have to wonder when the term...

Actually I think it is important to lobby legislators regardless of which party is in power. We need Senator Foghorn Leghorn going to the NIH Budget review meeting and saying, "Now Francis, I see y'all only got $5 million going to this ME/cfs disease thing. Now, I've been gettin' an earful from...

I've always thought it was an amazing coincidence that Tagamet, a front line drug in the treatment of stomach ulcers, was approved for over-the-counter sale in the US in 1995... the same year that the the FDA began to recommend antibiotic treatment for ulcers caused by h. pylori. I think...

Came across this really old tweet...

I wonder what it is when your vision "greys out" like TV static, or goes totally black for a few moments upon standing or rising from deep crouching position. I had this during most of my teen years, but it had pretty much gone away before I got ME in my early twenties. It must have been from...