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  1. Forbin

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    It seems odd that AFM is peaking every other year (at least since 2014). When I searched for "biennial virus," the only two that seemed to show up were "Respiratory Syncytial Virus" and "Parainfluenza Virus," both of which are human respiratory viruses. It seems they think AFM may be caused...
  2. Forbin

    Is there a link between allergies and ME/CFS?

    Post onset, I had provocative skin testing done. I had some reactions to grasses, but, apparently, a fairly major reaction to corn. This seemed somewhat odd, since I never previously noticed any reaction from eating corn or products containing corn as an ingredient. Post onset, I did have a...
  3. Forbin

    Has anyone had any relief from vision issues. Laptop use currently hurting my brain!

    I think you're right and that your eyes are moving in anticipation of the screen scrolling. If you have dizziness/vestibular problems, trying to visually track objects can make you feel dizzy. When my dizziness was at its worst, I'd momentarily feel dizzy just from watching a car move across a...
  4. Forbin

    Increased risk of chronic fatigue syndrome following burn injuries, 2018, Tsai et al

    Sounds like they are talking about sunburn as opposed to heat injury. Although I used to get mild to moderate sunburns as a child, it stopped when I was a teenager and no longer had access to a pool. However, I went out on a friend's catamaran in my early twenties - one or two years before the...
  5. Forbin

    Livestream Alan Light, PhD today at 6pm MST "New findings suggest that multiple mitochondrial mutations create susceptibility for ME/CFS"

    I got "page not found" at the above link for the live stream, but this worked: https://www.facebook.com/batemanhornecenter/videos/331133540814821/UzpfSTY3NDU0ODk5MjY0OTg1MjoxODMyNzczNzIzNDk0MDM0/
  6. Forbin

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    Interesting computer simulation of RBCs moving through a retina capillary. Gives a sense of the deformation that goes on. I suspect that this is slowed down compared to real time. You can set it to go 1.5x faster by clicking on the gearwheel next to "YouTube."
  7. Forbin

    Jeopardy (TV show) asks a question based on SEID/CFS

    "No, I'm afraid that now makes it all three contestants who answered 'What is The China Syndrome?'"
  8. Forbin

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    FWIW, it seems that one way RBCs can become more rigid is when small molecules (ligands) bind to a protein in the cell membrane called glycophorin A (GPA), which, in turn, interacts with other proteins in the cell membrane, reducing deformability. When tracer antibodies to human glycophorin A...
  9. Forbin

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    About eight months after onset, I underwent a battery of tests at a "famous" otologic institute to try to figure out the cause of my continuous "dizziness." They seemed stumped, but a senior doctor there said that they sometimes saw this kind of dizziness with "vascular insufficiency" to the...
  10. Forbin

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I stumbled upon this May 2018 article concerning Tryptophan, the Kynurenine Pathway and IBD (Inflammatory Bowel Disease). Tryptophan Metabolism through the Kynurenine Pathway is Associated with Endoscopic Inflammation in Ulcerative Colitis...
  11. Forbin

    News from the Institute of Neuroimmune Medicine (INIM), NOVA, Nancy Klimas

    Hopefully, this grant reflects on some success they've seen in their recent GWI trial. They're looking to do something similar in relation to ME, but are having trouble finding funding. In a video posted on this thread, Dr. Klimas said that a Parkinson's group had agreed fund a small ME/CFS...
  12. Forbin

    frontiers in Neurology: Neuroinflammation and cytokines in ME/CFS: A critical review of research methods - Michael VanElzakker et al - 2018

    I think this (the Columbia study in the video above) was more about showing a trend in a large group of patients (~300) vs controls, rather than producing "a consistent and replicable diagnostic cytokine profile" for individual patients.
  13. Forbin

    Golden hour (/month)

    I've never personally noticed a seasonal change, but I wonder if the explanation for feeling better could be as simple as improved sleep. I definitely sleep better when it is cold. Perhaps somewhat better sleep can tip the balance for some, but then the additional activity eventually catches up...
  14. Forbin

    OMF in Fire Zone...

    According to its website, the Open Medicine Foundation is located in Agoura Hills, CA. Currently, that area and many surrounding communities have been besieged by a wind-driven wildfire known as the "Woolsey Fire." The fire began on November 8th, and currently covers 90,000 acres across Ventura...
  15. Forbin

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    Interesting article from earlier this year in WIRED. REAL HEROES HAVE THE GUTS TO ADMIT THEY'RE WRONG
  16. Forbin

    Who said: don't bother testing patients?

    A 1991 editorial by SW contains the following: As seems par for the course, his 2½ page editorial contains 51 references. I found this among a compendium of similar SW quotes gathered by @Valentijn at PR. https://forums.phoenixrising.me/index.php?threads/simon-wessely-quotes.21025/
  17. Forbin

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    Clearly, he doesn't understand that Work = Power * time. That is, even with low available power, much can sometimes be achieved if the work can be carried out in small increments and/or over much more than the usual amount of time. It's the sort of thing that would be obvious to a physicist.
  18. Forbin

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    The supposed link between CFS and depression goes back to this July 1990 paper: Chronic Fatigue: A Prospective Clinical and Virologic Study ..in which only six of the 26 patients met the Holmes criteria. This was the famous study in JAMA (Journal of the American Medical Association) which...
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