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For anyone who missed it, Jen has posted a long thread of posts under the initial post on Twitter, including answering some people's questions:

OK.

I'm not sure what you are saying but to see all the tweets for anyone on any browser, you have to click "tweets and replies". If one clicks on "tweets", one doesn't see the replies. Nothing particularly unusual about this. https://twitter.com/cfs_research...

Apologies if this has been posted already:

Not critising but just to point out to everyone I still think it is useful to tweet, like or retweet even if one doesn't have many followers. Twitter now uses algorithms like Facebook to decide what is highlighted in people's feeds.

I'm not sure whether I am misreading what you said but improvement rates of 59% and 61% were reported in the Lancet using their revised, very lax, definitions of improvement.

Somebody who got this reply sent it on to me. This is not true. A paper on recovery was published in a peer-reviewed journal. Although they couldn't have referred to it here a paper is coming out soon which includes a reanalysis of the primary outcomes as well as the recovery measure.

If I recall correctly she is a patient (I think connected with one of the London ME groups) and she did a (sociology?) PhD on the issue.

https://sci-hub.tw/http://onlinelibrary.wiley.com/doi/10.1111/j.1365-277X.2008.00933.x/full Here is a paper that looked at the issue. Unfortunately I don't think it gives normative data on diet but does say:

I've heard quite a few people challenge the claim that male pattern baldness gets more. I have never seen good evidence that it is true.

From the Royal Colleges report (1996) written by Peter White, Simon Wessely and others:

Though I wouldn't say all tips have no value. My family converted our garage into a room for me. I found by lying on the couch in that room during the day rather than lying on my bed I did tend to get to sleep quicker.

I'm not sure whether "oversleeping" is that bad a thing in a lot of cases. I would also question the example of the teenager who plays a bit of basketball now and again: I think they are playing with fire. But I suppose you need to adjust advice to reality. But I think it contains some useful...

I have seen a few people in recent years post good day/bad day photos side-by-side on social media. I can't remember whether there was a specific hashtag. It could be done again really at any stage.

The page has definitely been updated since January.

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by Paul Whiteley PhD continues at: https://tinyurl.com/y9q5vtwj i.e. https://questioning-answers.blogspot.ie/2018/02/fitnet-nhs-fatigue-in-teenagers-protocol-cfs.html

Given you have to make 2 study trips to Stanford, I don't think I will.