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It would have been interesting if they'd also used and reported on a more strict threshold such as a score greater than or equal to 6, as was used as an entry criterion in PACE Trial.

I don't believe they specify which threshold they used.

These don't seem to have been used with regard to diagnosis or exclusions. Also they don't seem to have published any data on them in the paper.

Internet therapy for fatigue syndrome is effective and safe 02-02-2018 Behavioral therapy via the Internet for people with chronic fatigue syndrome (CFS), also known as ME, helps and is safe. This appears from research by the AMC and Radboudumc, which was published yesterday by The British...

It is odd to see that only 20.7% of those classified as having CFS reported having unrefreshing sleep. Unrefreshing sleep is usually one of the most most frequently reported symptoms in CFS cohorts. 14% of those not satisfying the CFS criteria also reported unrefreshing sleep.

It was odd to see a higher prevalence in males. I'm not sure I've ever seen that before in CFS studies.

As well as the questionnaire, they did use this.

There is a thread of tweets on this here:

Yes I always thought the fact that SEID spelt dies backwards was completely irrelevant. I thought that ME/SEID to replace ME/CFS would be a way to go. We could see which would survive.

North-east family speak of ME ordeal January 30, 2018 https://www.pressandjournal.co.uk/fp/uncategorized/1402870/exclusive-north-east-family-speak-of-me-ordeal/ They are presumably talking about Esther Crawley's service

I have to wonder whether this article was prompted in some way by publicity for the event given the timing. They are presumably talking about Esther Crawley's service I have set up a separate thread on this: https://s4me.info/threads/scotland-north-east-family-speak-of-me-ordeal.2193/

https://www.nrshealthcare.co.uk/articles/condition/chronic-fatigue-syndrome

I remember one person writing to the group I help run and saying she had no money to donate but at the same time she was asking about a few different therapies. She said she had spent over £20,000 at that stage trying different therapies. This was the 1990s so that would be a lot more in today's...

As I have said, I accept that some people don't have the money to donate to research. However only a tiny fraction of people affected donate so I think there are plenty of people who could donate something but don't.

Most studies in the US seem to give some sort of payment. There may be a different culture there. For example, a lot of people get paid to donate blood there.

Eur J Pain. 2016 Oct;20(9):1502-12. doi: 10.1002/ejp.874. Epub 2016 Apr 18. Increased pain and muscle glutamate concentration after single ingestion of monosodium glutamate by myofascial temporomandibular disorders patients. Shimada A1,2, Castrillon EE3,4, Baad-Hansen L3,4, Ghafouri B5, Gerdle...

Imipramine versus placebo for multiple functional somatic syndromes (STreSS-3): a double-blind, randomised study. https://www.ncbi.nlm.nih.gov/pubmed/28408193 Abstract BACKGROUND: Functional somatic syndromes, including chronic fatigue syndrome or irritable bowel syndrome, often co-exist...

I don't want to edit much messages people have liked so thought I would write this here as I want to highlight that I don't expect everyone to be able to donate or fundraise. Some people can be in difficult financial circumstances, I know and accept that. I have just found it interesting to...

Just following on from my earlier posts, I think the lack of hard science could influence how people who have improved see things. I speculate that some people who have improved don't donate or fund-raise as they see the illness as treatable, other people just need to do whatever it is they have...