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https://ethos.bl.uk/OrderDetails.do?did=1&uin=uk.bl.ethos.760921

I don’t think their actions here were particularly bad (though we can be cynical about their motives). I would feel much more comfortable if they were challenged on another action by them which would better exemplify their bias.

The CDC CFS program has funded research into the effects of alpha-interferon - article added Dec 2011 http://www.cdc.gov/cfs/news/features/cytokines-and-cfs-symptoms.html

Tweet was deleted. It was just somebody from BBC World Service looking to interview Pariante.

Somebody suggested to me that this might be of relevance to ME/CFS research. I'm not sure we really need to get into this depth in terms of some issues, but who knows. https://papers.ssrn.com/sol3/papers.cfm?abstract_id=3204791...

There have been other studies looking at the effects of interferon-alpha and fatigue: https://www.ncbi.nlm.nih.gov/pubmed/?term=interferon-%CE%B1+fatigue The CDC CFS budget was even used to support a study in the US in the 2000s. I wonder whether different studies found different or similar...

There have been other studies looking at the effects of interferon-alpha and fatigue: https://www.ncbi.nlm.nih.gov/pubmed/?term=interferon-%CE%B1+fatigue The CDC CFS budget was even used to support a study in the US in the 2000s. I wonder whether different studies found different or similar...

Just to be negative: significant others could encourage them to exercise when really they should be resting or at least not exercising. What does a "more useful understanding of GES" mean? The impression seems to be anything which gets people to exercise is good whether or not there is any basis...

Though pre-illness knowledge may not be a good basis to approach activity management in ME/CFS, it could even be detrimental.

I'm not sure that results were good enough to justify this. And is no mention that convincing patients that their symptoms are down to deconditioning and the like could be risky.

Good that the underlined bit was explicitly said but a reminder that overall the subjective results in this trial weren't very good.

I think this is actually a good point. And why a coercive approach is very questionable e.g. Peter White has turned down at least one individual from a payment saying they could get better with CBT and/or GET. https://forums.moneysavingexpert.com/showthread.php?t=2356683

All speculation. They didn't measure these things. They're suggesting the patients are to blame for their lack of improvement/their worsening. Just to point out again that recovery wasn't measured in this study, even though they refer to recovery a number of times in this paper. That was a...

Regarding their claim that an average lack of employment improvements might be down to the economy in the 2000s (a questionable claim as the trial recruited over 4 or 5 years): the Collin & Crawley 2017 paper on English CFS clinic patients (who would have got GET and/or CBT mainly) also didn’t...

A bit irritating, given that people didn't necessarily do that well in this study, even by the subjective outcome measures reported (though it is possible that there were a few individuals within the group who did well but we don't have data on them) So this therapy doesn't work, so they say a...

I saw it previously in a magazine for local group in England in the early- to mid-2000s from a patient of Peter Denton White. PDW having a weird view of recovery doesn't explain the big changes made in the recovery criteria - he had these views about recovery when the recovery criteria were set...

Is that true? I don’t remember seeing that.

Press release in Dutch from 3 Dutch charities/groups: https://mecvs.nl/wp-content/uploads/2018/12/Persbericht-reactie-op-brief-minister-def.pdf