Bacme
British Association for CFS/ME
2020 Conference
Creative Approaches in CFS/ME Services
Exploring evidence-based interventions for working with CFS/ME
Wednesday May 20th 2020
Burton Hospital Education Centre
https://www.bacme.info/civicrm/event/info?id=4...
CFS/ME National
Services Survey Feb 2018
Snap shot audit
BACME
National Services Workstream Report
Published March 2019
https://www.bacme.info/sites/bacme.info/files/BACME CFS ME National services survey March19.pdf
afme
bacme
barton
conference
covid-19
ebm
evidence-based medicine
guidelines
jessica bavinton
long covid
me/cfs
miller
pace trial
post-viral fatigue
severe
sussex me society
vitality360
#MEAction just sent an email promoting that:
https://www.meaction.net/2020/01/23/charging-your-batteries/?mc_cid=d058865bf9&mc_eid=c1fdea04b1
(the youtube link does not seem to work).
But the only 'research' they seem to highlight is whatever it is they are doing at Sussex Uni.
this page on their site of congratulations is revealing:
https://measussex.org.uk/about-us/30-years-plus/
Merged thread
Help for children with ME – December
https://measussex.org.uk/help-for-children-with-me-december/
eta: from JAn 2020
https://measussex.org.uk/year-change-january/
Online CBT for IBS: Going to be a big money spinner for RMM:
https://www.s4me.info/threads/protocol-persistent-physical-symptoms-reduction-intervention-a-system-change-and-evaluation-prince-2015-onwards-chalder-moss-morris-et-al.7965/page-8#post-230272
Again, too many 'some'. Doesn't clearly indicate that the majority of sufferers remain ill/housebound/unable to work.
lot of 'boom and bust' references throughout
very wishy-washy; also throughout they say to consult ME specialists, yet these are usually the people who prescribe CBT/GET.
ie...
from other recent outpourings, I strongly suspect that this is all moving towards promoting ACT as the 'therapy du jour', and possibly also the group therapy which seems to be on the rise, and then of course the jewel in the crown (and probably the most lucrative) ......online CBT.
I don't know...
Health-related quality of life in patients with myalgic encephalomyelitis/chronic fatigue syndrome: an Australian cross-sectional study
https://link.springer.com/article/10.1007/s11136-019-02411-6
see
Frequent attenders with medically unexplained symptoms: Service use and costs in secondary care
https://www.researchgate.net/publication/11489132_Frequent_attenders_with_medically_unexplained_symptoms_Service_use_and_costs_in_secondary_care
https://sci-hub.tw/10.1192/bjp.180.3.248
hardly...
The Journal of Neuropsychiatry and Clinical Neurosciences
Volume 32, Issue 1
Special Issue: Functional Neurological Disorder
January 2020
https://neuro.psychiatryonline.org/toc/jnp/32/1
https://www.babcp.com/Conferences/Spring.aspx
16th April
Workshop Two
Persistent (Medically Unexplained) Physical Symptoms: A Scientist Practitioner Approach
Trudie Chalder, King’s College London and David McCormack, Queen’s University Belfast...
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