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  1. Sly Saint

    How are behavioural interventions delivered to children (5–11 years old): a systematic mapping review - Brigden, Crawley et al Dec 2019

    full paper here https://bmjpaedsopen.bmj.com/content/3/1/e000543
  2. Sly Saint

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    Results of the feasibility phase of the managed activity graded exercise in teenagers and pre-adolescents (MAGENTA) randomised controlled trial of treatments for chronic fatigue syndrome/myalgic encephalomyelitis Pilot and Feasibility Studies volume 5, Article number: 151 (2019) Published: 19...
  3. Sly Saint

    Genome-wide analysis identifies molecular systems and 149 genetic loci associated with income, 2019, Hill et al

    Researchers Link Genes to Income. Other Scientists Beg to Differ. https://undark.org/2019/12/20/abstracts-genetics-income-science-backlash/
  4. Sly Saint

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Gary is currently undergoing chemotherapy; probably not a good time to 'bother' him.
  5. Sly Saint

    National Human Genome Research Institute: Researchers discover a new auto inflammatory disease called CRIA syndrome

    research article here https://www.nature.com/articles/s41586-019-1828-5 sci hub : https://sci-hub.tw/10.1038/s41586-019-1828-5
  6. Sly Saint

    Psychiatry Advisor: Addressing depression in ME/CFS, 2018, Cindy Lampner

    This is the NHS self-assessment test for depression: https://assets.nhs.uk/tools/self-assessments/index.mob.html?variant=42 There was a program on BBC a while ago, where the presenter/doctor did the test and it recommended he seek medical help. (The test was developed with funding from Pfizer)...
  7. Sly Saint

    BMJ : The need for speed: observational study of physician driving behaviors Dec 2019

    https://www.bmj.com/content/367/bmj.l6354
  8. Sly Saint

    The Many Faces of Scientific Fraud - excerpt adapted from "Fraud in the Lab"

    Concentrates on lab research. https://quillette.com/2019/12/21/the-many-faces-of-scientific-fraud/ another RT from MS, expert on the subject
  9. Sly Saint

    Ron Davis latest: more evidence of "something in the blood" (Simon M blog)

    It might also be interesting if they could see whether the concentration of the 'something' changes up or down pre and post stressing; ie if there is a connection with PEM.
  10. Sly Saint

    Bogus research

    W. John Martin Institute of Progressive Medicine, South Pasadena, USA https://medcraveonline.com/JHVRV/JHVRV-07-00211.pdf press release: https://www.24-7pressrelease.com/press-release/468509/viruses-with-renegade-cellular-and-molecular-genetic-sequences-implicated-in-many-illnesses
  11. Sly Saint

    Gulf War Illness-associated increases in blood levels of interleukin 6 and C-reactive protein: biomarker evidence of inflammation- Bach et al Dec 2019

    full article here https://bmcresnotes.biomedcentral.com/articles/10.1186/s13104-019-4855-2
  12. Sly Saint

    Open Medicine Foundation (OMF) fundraising

    Youtube generated transcript
  13. Sly Saint

    BMJ Article :Academic publishers urge Trump not to demand open access for federally funded research Dec 2019

    This article was originally behind a paywall. full text here: https://www.bmj.com/content/367/bmj.l7064?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage
  14. Sly Saint

    University of Liverpool’s Doctorate in Clinical Psychology cock-up at conference

    Just been reading about something that happened in Nov 2019 at the Group of Trainers in Clinical Psychology’s (GTiCP) 2019 annual conference. This is a write-up from attendees: full blog here http://www.psychchange.org/racism-is-not-entertainment.html and the subsequent apology: full...
  15. Sly Saint

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    IMO ease of recruitment will largely depend on what happens with the NICE guidelines and if the changes that we want, materialise or not. It's worth considering that the international MS community have been involved in similar gene projects for many years ( the MS DNA bank is in the US)...
  16. Sly Saint

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    @Emily Taylor ? eta: https://solvecfs.org/dr-nancy-klimas-talks-me-cfs-and-the-need-for-better-medical-education-with-sheknows-com/
  17. Sly Saint

    FITNET-NHS Esther Crawley - 5th protocol out now

    another one! 19 Dec 2019 Investigating the effectiveness and cost-effectiveness of FITNET-NHS (Fatigue In Teenagers on the interNET in the NHS) compared to activity management to treat paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME): amendment to the published protocol...
  18. Sly Saint

    Blog: BMJ Opinion: Dear Father Christmas—The BMJ Patient Advisory Panel’s wish list

    link taken from comment All I Want for Christmas … Is a Better Scientific Publishing Model https://powerfulpatients.org/2019/12/11/all-i-want-for-christmas-is-a-better-scientific-publishing-model/
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