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  1. Sly Saint

    Lightning Process study in Norway - Given Ethics Approval February 2022

    soon will https://www.psych.ox.ac.uk/news/65th-president-and-chairman-of-the-board-of-the-academy-of-consultation-liaison-psychiatry
  2. Sly Saint

    ME Epidemiology - prevalence and peak ages of onset

    Post copied from here eta: https://www.mdpi.com/2218-1989/10/5/216
  3. Sly Saint

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Article in Science Norway Cancer drug helped patients with chronic fatigue syndrome (CFS/ME) full article here https://sciencenorway.no/chemotherapy-chronic-fatigue-syndrome/cancer-drug-helped-patients-with-chronic-fatigue-syndrome-cfsme/1689388
  4. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Have watched it. Good in parts but I wish he would make it clearer when he keeps talking about post viral fatigue, and then mixes with PVFS. Best bit is around from 5 minutes in where he asks the question could post covid that goes on to pvf lead to chronic ME, and whether exercise could make...
  5. Sly Saint

    Coronavirus - worldwide spread and control

    and yet 05/25/2020 08:49 pm ET Updated 2 hours ago WHO Warns Of ‘Second Peak’ In Coronavirus Infections If Restrictions Lifted Too Soon “We cannot make assumptions that just because the disease is on the way down now it is going to keep going down.”...
  6. Sly Saint

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I just came across this NICE pathways: "Chronic fatigue syndrome myalgic encephalomyelitis overview"...
  7. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    Blog by OMEGA (the opposing mega group) I can't vouch for the accuracy. "A Letter to Jeremy Hunt .............and How Millions of ‘MUS’ Patients Lose Out in the NHS." https://opposingmega.wordpress.com/2020/05/23/a-letter-to-jeremy-hunt/#comments
  8. Sly Saint

    Reduced Cardiac Vagal Modulation Impacts on Cognitive Performance in CFS, 2012, Beaumont et al

    (1 Fukuda) https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0049518
  9. Sly Saint

    Coronavirus - worldwide spread and control

    Somerset hospital closed to new patients to halt spread of coronavirus https://www.theguardian.com/world/2020/may/25/somerset-hospital-weston-general-hospital-closed-new-patients-halt-spread-coronavirus
  10. Sly Saint

    United Kingdom: Sussex & Kent ME/CFS Society News

    Sussex ME Society on managing the aftermath of the virus https://www.gscene.com/news/sussex-me-society-on-managing-the-aftermath-of-the-virus/ is Caroline Lucas not aware that the current NICE guidelines have been deemed 'unfit for purpose' and potentially harmful for years and are being...
  11. Sly Saint

    European ME Coalition (EMEC)

    I don't know if this has already been posted Evelien Van Den Brink's speech in the European Parliament On 3 Oktober 2019, Evelien Van Den Brink made a speech in the European Parliament on the need for more scientific research on the illness Myalgic Encephalomyelitis (ME).
  12. Sly Saint

    BBC Blog: #WildlifeFromMyWindow

    full blog here https://www.bbc.co.uk/blogs/natureuk/entries/ac4a09d4-1337-4fd2-b75e-2731e36a8a22
  13. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    and yet we have this: https://www.s4me.info/threads/kings-college-london-persistent-physical-symptoms-research-and-treatment-unit.14514/ and: https://www.s4me.info/threads/the-iapt-pathway-for-people-with-long-term-physical-health-conditions-and-mus-full-implementation-guidance.6948/ TC...
  14. Sly Saint

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    https://training.cochrane.org/resource/cochrane-and-wikipedia-improve-online-health-related-information-accessed-billions-people
  15. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    the correct name (WHO) is Postviral fatigue syndrome https://dxrevisionwatch.com/2018/08/17/update-on-the-status-of-the-classification-of-pvfs-me-and-cfs-for-icd-11-part-one/ but as with CFS being shortened to chronic fatigue, PVFS is also incorrectly abbreviated to post-viral fatigue...
  16. Sly Saint

    Kara Jane Spencer, UK singer with severe ME

    follow up article by BBC Kara Jane Spencer: More than 100 musicians offer help on album https://www.bbc.co.uk/news/uk-england-derbyshire-52768716
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