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  1. Sly Saint

    ME Awareness day / week / month and #MillionsMissing May 2020

    Australia: Griffith Bridge and Ian O’Connor Building light up for ME/CFS Awareness Day https://news.griffith.edu.au/2020/05/12/griffith-bridge-and-ian-oconnor-building-light-up-for-me-cfs-awareness-day/
  2. Sly Saint

    Resources for help getting food during quarantine and safe handling of food

    "The Scottish Government has set up a helpline for vulnerable people, including those with M.E. Tel: 0800 111 4000. Callers will be automatically connected to their local authority who will support them to access the service they need, such as essential food and medication, links to local social...
  3. Sly Saint

    ME Awareness day / week / month and #MillionsMissing May 2020

    hmm yes; odd. here's another one from Scottish Daily mail https://www.pressreader.com/uk/scottish-daily-mail/20200511/281565177938219 eta: it is back there now https://www.heraldscotland.com/news/18437238.coronavirus-scotland-charity-warns-covid-will-cause-spike-cases/
  4. Sly Saint

    A general thread on the PACE trial!

    does no one check their 'facts' these days(?) I don't know about questions, maybe a few links to things they maybe should have read before 'answering'.
  5. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    In Practice, Off-The Shelf Solutions Silence IAPT Client’s Concerns 10th May 2020 "the Talking Therapist does the ‘talking’ not the client" http://www.cbtwatch.com/in-practice-off-the-shelf-solutions-silence-iapt-clients-concerns/
  6. Sly Saint

    Scottish Health Council:Gathering public experience of Myalgic Encephalomyelitis (ME) survey: Feb 2020

    Coronavirus in Scotland: Charity warns Covid will cause a spike in ME cases - as it calls for 'harmful' exercise treatment to be banned article here https://www.heraldscotland.com/news/18437238.coronavirus-scotland-charity-warns-covid-will-cause-spike-cases/
  7. Sly Saint

    ME Awareness day / week / month and #MillionsMissing May 2020

    Copied from this thread Coronavirus in Scotland: Charity warns Covid will cause a spike in ME cases - as it calls for 'harmful' exercise treatment to be banned article here https://www.heraldscotland.com/news/18437238.coronavirus-scotland-charity-warns-covid-will-cause-spike-cases/
  8. Sly Saint

    ME Awareness day / week / month and #MillionsMissing May 2020

    Sheffield ME group warning to COVID-19 patients full article: https://www.sheffieldtelegraph.co.uk/health/coronavirus/sheffield-me-group-warning-covid-19-patients-2846732
  9. Sly Saint

    Coronavirus - worldwide spread and control

    research paper mentioned (still going thro peer review) Controlling the SARS-CoV-2 outbreak, insights from large scale whole genome sequences generated across the world https://www.biorxiv.org/content/10.1101/2020.04.28.066977v1
  10. Sly Saint

    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    Just been re-reading the therapist manual for GETSET and there is this: https://www.qmul.ac.uk/wolfson/media/wolfson/current-projects/GETSET-therapists-manual-with-appendices.pdf So they acknowledge they know about the reported harms of GET, but dismiss them due to their own beliefs. And how...
  11. Sly Saint

    Cancer-related fatigue and functional impairment – Towards an understanding of cognitive and behavioural factors: Hughes, Chalder et al May 2020

    https://www.sciencedirect.com/science/article/abs/pii/S0022399919309183 (not yet available on sci-hub)
  12. Sly Saint

    United Kingdom: Sussex & Kent ME/CFS Society News

    Sussex ME Society call for NHS services to be further developed https://www.gscene.com/news/sussex-me-society-call-for-nhs-services-to-be-further-developed/ I really wish someone (Carol Monaghan?) would put Caroline Lucas straight on the SMES. I am also at a loss as to how the members...
  13. Sly Saint

    Canada: OPERA MARIPOSA'S ME/FM AWARENESS RAISING& FUNDRAISING SHOW

    Disability-Led Opera Company Raises Their Voice For At-Risk Chronic Illness Community During COVID-19 full article: https://www.broadwayworld.com/bwwopera/article/Disability-Led-Opera-Company-Raises-Their-Voice-For-At-Risk-Chronic-Illness-Community-During-COVID-19-20200508
  14. Sly Saint

    Article (Canada): Park resident granted Premier’s Council Award May 2020

    full article here https://www.sherwoodparknews.com/news/local-news/park-resident-granted-premiers-council-award
  15. Sly Saint

    Article by Prof Warren Tate (NZ): Research unveiling the ‘invisible illness’ May 2020

    short article; rest here http://www.thestar.co.nz/features/research-unveiling-the-invisible-illness/
  16. Sly Saint

    Open Epigenetics of Post-exertional Malaise in Patients With ME/CFS: Oct 2020 [This trial is not yet open for recruitment]

    Sponsor Vrije Universiteit Brussel Overall contact Andrea Polli, MSc full details here: https://www.smartpatients.com/trials/NCT04378634
  17. Sly Saint

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    and the second link goes to merckmanuals aka msdmanuals (although not to the CFS page). see https://www.s4me.info/threads/msd-manual-us-chronic-fatigue-syndrome-updated-apr-2020.14921/
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