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Posts about floaters have been moved to: Floaters, visual snow syndrome and blurry vision

Just finding this thread, the description of visual snow is a revelation. I definitely get that, just like the picture. I have previously talked about my visual symptoms as blurriness, which comes and goes. It got to be a major problem when driving. I could still drive safely, but I couldn't...

When I first got ME/CFS, I too noted lots of floaters. I did report it to my GP, but I think she thought I was just being hyper vigilant. I guess that's possible - I was trying to find clues as to what had happened. Over time, I ceased to be aware of them. I too have heard that the brain is...

From a quick skim of the paper: They had a control group that hadn't had Covid-19, and they had groups who had mild and severe Covid-19. The participants were carefully selected to not have other diseases that might confound the results. But, given that the abstract talks about a hypothesis...

Oh, now I feel bad about posting a puerile comment about someone's acronym. Not quite bad enough to delete it.

Umm, I make that "A WEE", not "AWE". But I guess "The Power of A Wee" didn't have quite the same ring to it for the title of a self-help book.

Isn't that a bit of a weird statement? MS has MRI imaging that eventually shows the physical problem - there's no need to resort to whether there are hypersensitivities or not to differentiate it from ME/CFS. Even if there was, 16% of the people with MS in this sample reported having both...

There's a paywall. This has the potential to be an interesting study. It would be helpful to know the incidence of noise and light sensitivities, and to understand how well they are correlated with overall illness severity in ME/CFS and in MS. I would have liked to see some information about...

I'll play. There isn't much detail at the Clinical Trials site. https://clinicaltrials.gov/ct2/show/NCT05676008 1. waitlist-controlled clinical trial A wait-list control is not appropriate for reducing the impact of the placebo effect, as people on a wait-list can experience a nocebo effect...

There's the results of the GDF-15 levels in this study (the boxes are the interquartile range). Clearly some of the patients with a CFS diagnosis also had levels of of GDF-15 over 1100 pg/ml, and some patients with PMM had levels below 1100 pg/ml. I thought the findings of the...

We've seen high GDF-15 implicated in hyperemesis in pregnancy and also in severe ME/CFS - more here. This Spanish study makes no reference to the paper that found high levels of GDF-15 in severe ME/CFS patients. That finding might cast doubt on the conclusion the authors of this study make...

I also note "Long covid syndrome" on that list - which is a bit problematic, as Long covid syndrome could be all sorts of things, including ME/CFS.

I haven't read this paper yet, just the abstract. The role of cortisol in cancers is something I've been giving some thought to, after a friend said that he thought the stressful job he had when he first became ill might have caused his leukemia. The title of the following 2018 paper appears...

Great tweets from DressFor_ME and RobertHMcMullen

This is probably similar to my background, it probably does make a difference to expectations. Close friends, or even acquaintances, would typically be accommodated, even if it's not actually the most comfortable option for anyone. I think it's perceptive of you to have noticed that culture...

One thing to think about is looking after the relationship with your spouse. Probably you categorically telling your spouse their friend cannot stay will damage your relationship. So, at least being open to the possibility of a visit as you together talk through the consequences of the options...

Detecting exhaustion with smart sportswear Swiss team - there's potential for using the technology to quantify gait changes in ME/CFS.

There is mention of him having to respond to leading questions though: So, I'm sure the event reinforced the closed mindedness of BPS advocates to Nath. Perhaps it will be the most important outcome of this conference, which otherwise was just BPS proponents preaching to each other.

Report in the above summary document about Avi Nath's presentation. Sounds as though he was holding the line on the assumption of a biological mechanism, which is a relief.

@Ravn :thumbup: There is this recent paper: What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults 2022 There is a 4 page summary of the NICE guideline, discussed here: 4-page summary of the 2021 NICE ME/CFS...