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  1. Hutan

    Trajectories of functional limitations, health-related quality of life and societal costs in individuals with long COVID, 2024, Wang+

    That's not a very impressive improvement over the 6 months, considering natural improvement. And that the people who dropped out may have been too sick or too disillusioned to turn up to the follow-up.
  2. Hutan

    Opinion Consequences beyond acute SARS-CoV-2 infection in children, 2024, Saydah et al

    From the article: That may be useful for people advocating for children to get access to vaccinations. (although I think the protection provided by vaccination is over-stated, as is the protection provided by not being obese).
  3. Hutan

    Opinion Initiating Long Covid RECOVERy, 2024, Marrazzo, Gibbons, Koroshetz

    Jeanne Marrazzo - Director of the National Institute of Allergy and Infectious diseases, NIH Gary Gibbons - Director of the National Heart, lung, and Blood institute Walter Koroshetz - Director of the National Institute of Neurological Disorders and Stroke
  4. Hutan

    Effects of a plank-based strength training programme on muscle activation in patients with long COVID: a case series, 2024, Navarro-Lopez et al

    Ditto for people with a similar condition to mine, given that pilates is all about strengthening the core. Analysing what they say there in the abstract: Case series study = no controls, so we have no idea if people would have had reduced fatigue levels at the end of the period regardless of...
  5. Hutan

    Perrin Technique

    Ah, that will be the youth-giving effects of the Perrin technique.
  6. Hutan

    Incompetence and “Useless” Research into ME and Long COVID

    I really feel your pain @Yann04. So much research is rubbish. Just yesterday, I listened to a young researcher on the radio. The interview was billed as 'why mindfulness or gratitude journalling may not be the way to happiness - the problems with research on happiness'. "Great!" I thought...
  7. Hutan

    Identification of soluble biomarkers that associate with distinct manifestations of long COVID, 2025, Gao, Buggert, Peluso et al

    For sure, but there are things that can be done to make more homogeneous cohorts e.g. people whose collection of symptoms meet ME/CFS criteria and who have had the symptoms for over one year; people with observable lung damage; people who were on mechanical ventilation and have observable lung...
  8. Hutan

    Identification of soluble biomarkers that associate with distinct manifestations of long COVID, 2025, Gao, Buggert, Peluso et al

    From another study: Improvement of immune dysregulation in individuals with long COVID at 24-months following SARS-CoV-2 infection, Matthews et al, 2024 It also found increased PD-1 and TIM3 expression (but higher rather than lower specific antibody levels) in the Long Covid group. It looks...
  9. Hutan

    UK: British Psychological Society survey on their planned new guidance on ME/CFS, deadline 9th October 2024

    That is looking pretty good. Quotes from the survey: I thought that was interesting, because, it is true that for psychological services aimed at helping people cope, what matters is how the patient feels rather than the level of activity. Of course though, that could be seen to exempt...
  10. Hutan

    Preprint Relationship between plasma cortisol concentration and Long COVID symptoms in the post-acute phase of COVID-19 ..., 2024, Dalhuisen/Peluso/etc

    Tom Kindlon tweeted this: And, it really is great. Yes, going just by the abstract, a helpful paper with a sufficient sample size. I take this as more evidence that cortisol is not relevant to ME/CFS. The levels were not even trending to lower. Indeed. It's a shame that that point was not...
  11. Hutan

    Using LinkedIn for advocacy campaigns

    It's been a while since I actively used LinkedIn but I think it is getting more popular for posting information with the decline in Twitter/X. I wonder, how many of our members have a LinkedIn account and how many of you actively use it? Can you tell us about any experiences using LinkedIn...
  12. Hutan

    News from Austria and Switzerland

    Barriers and facilitators of healthcare access for LC patients in a universal healthcare system: qualitative evidence from Austria, 2024, Gamillscheg
  13. Hutan

    Long-Term Risk of Autoimmune and Autoinflammatory Connective Tissue Disorders Following COVID-19, 2024, Heo et al.

    I'm trying to think of the confounding factors, just for something to do - maybe a change in access to diagnosis? Maybe people couldn't get to the doctor during the first part of the pandemic, and then there was a backlog to get to specialists so as to get diagnosed with these conditions. So...
  14. Hutan

    Preprint Fatigue >12 weeks after coronavirus disease COVID is associated with reduced reward sensitivity during effort-based decision making, 2024, Scholing+

    Oh, where to start with this one? Characterisation of the groups The >12 week group included both people who had recovered and people who still had symptoms. '12 week' doesn't mean having persisting symptoms for 12 weeks. It just means that the people had a Covid-19 infection more than 12...
  15. Hutan

    Netherlands: NKCV (Hans Knoop)

    Certainly the testimonials themselves could be real, but they get their power from the person offering the testimonial appearing to be willing to stand up and say they have been helped. By giving their name and photo, they are effectively putting their reputation on the line. That's exactly why...
  16. Hutan

    Netherlands: NKCV (Hans Knoop)

    The clinic has been shown to be using stock photos on testimonials, calling into question the veracity of the testimonials themselves.
  17. Hutan

    Netherlands: NKCV (Hans Knoop)

    https://nkcv.nl/ Nederlands Kenniscentrum Chronische Vermoeidheid This Netherlands clinic takes a psychosomatic approach, offering 'mind over matter' treatments. Hans Knoop and Tanja Kuut are part of a large team of psychologists.
  18. Hutan

    News from The Netherlands

    Thanks for reporting that @rvallee. I very much hope someone will make a complaint and the veracity of the testimonials will be investigated. Of course, as you say, there will be plenty of wriggle room and any sanction will be trivial, but still. The clinic probably believes that anything...
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