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  1. Kalliope

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    Yup, that's a precise translation. I have a feeling this might be from input by prof. Wyller or another Lightning Process-supporter.
  2. Kalliope

    The Body - Using Lessons from HIV Activism, People With CFS Fight for the #MillionsMissing

    The Body - The Complete HIV/AIDS Resource Journalist Olivia G. Ford Using Lessons From HIV Activism, People With Chronic Fatigue Syndrome Fight for the #MillionsMissing Simpson and Wilder both use the skills they've gleaned over decades as HIV activists to understand who has the power to make...
  3. Kalliope

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    The editor sums up the debate. I had hoped she'd learned a bit more about ME recently, but no.. For outsiders, the biopsychosocio-approach seems a reasonable compromise between those who "believe" (her word) ME is physiological and those who believe ME is psychological. But it is not enough...
  4. Kalliope

    News from Scandinavia

    One of the biggest podcasts in Norway, Tusvik & Tønne, is a comedy podcast. They're known to be quite politically incorrect, and occasionally joke about ME. But out of nowhere today they told their listeners that 12th of May is the international awareness day for ME, that this is a disease they...
  5. Kalliope

    Finland: Draft report on planned guidelines based on Fink's functional disorders

    I assume Per Fink is part of the international network Norwegian prof. Wyller talks about? Wyller and his research group at Akershus University Hospital have been researching ME for many years. They belong to an international environment that investigates the development of ME after an...
  6. Kalliope

    News from Scandinavia

    Excellent letter-to-the-editor by severe ME-patient in a local newspaper in Norway. Agnete Skrede i Fjordingen: Den internasjonale ME-dagen 12. mai google translation: The international ME-day 12th of May
  7. Kalliope

    News from Scandinavia

    There will be a documentary about ME on Norwegian television (TV2) May 23. 21.40. It is called De Bortgjemte (The Hidden Ones). The documentary has followed the research to Fluge and Mella and some of their patients for two years. The documentary has an Instagram profile (currently with only...
  8. Kalliope

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    New article today at Forskning.no about ME. Professor Kristian Sommerfelt and the national center of expertise on CFS/ME are interviewed again. This time prof. Wyller (biopsychosocio-researcher - has an ongoing trial on music therapy as treatment for ME and wants to do a trial on LP and ME) is...
  9. Kalliope

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    Forskning.no is a website about research for a general audience. ME has been debated several times lately, including research, the PACE-trial, psyche vs soma etc. A while ago, a psychologist with ME wrote an excellent debate article about ME at forskning.no. But she used a pseudonym without...
  10. Kalliope

    David Tuller - Trial By Error: A Q-and-A with Leonard Jason, on Case Definition

    A Q-and-A with Leonard Jason, on Case Definition A Brief Update: Berkeley’s crowdfunding period closed on April 30th–Monday night. I ended the campaign with $87,580. After Berkeley’s 7.5% in fees, the funds will cover my salary/benefit from July 1, 2018 to June 30, 2019, and some travel costs...
  11. Kalliope

    Nederlands Dans Theater with video dedicated ME-patients everywhere

    This was stunning!! Nederlands Dans Theater (NDT) on Facebook: Anil van der Zee is a former professional (ballet) dancer, who suffers from Myalgic Encephalomyelitis (ME). ME is a debilitating neuroimmune disease affecting 17 million children and adults worldwide. NDT supports Anil’s mission to...
  12. Kalliope

    David Tuller's new crowdfunding campaign (April 1, 2018)

    ah yes, good point @Solstice and @Alvin ! ETA: Even better!
  13. Kalliope

    David Tuller's new crowdfunding campaign (April 1, 2018)

    The crowdfunding has ended at 82,580$ 110% of the goal on 75,000$ 948 donors :balloons::balloons::party::balloons::balloons:
  14. Kalliope

    Norwegian health authorities classify Lightning Process as alternative treatment

    Yes, we need to keep an eye on them. They recently held a lecture on a seminar on MUPS about ME. The senior doctor from the national center of expertise on CFS/ME also held a lecture, she is known for a biopsychosocial approach to ME, is very enthusiastic about the SMILE-trial and her center...
  15. Kalliope

    Norwegian health authorities classify Lightning Process as alternative treatment

    The "Patient Organisation" Recovery Norge - basically a Facebookpage promoting Lightning Process, led on by MD Henrik Vogt and LP-coach Live Landmark - is trying to make Lightning Process seem as serious and scientifically valid as possible. Today they've posted twice about the magnificent...
  16. Kalliope

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Members of Science For ME have spoken: #Justice4ME got most votes as hashtag/slogan to use on social media when donating to research, patient organisations, Tuller etc, for instance during a debate on ME. Fell free to use it. Let's see if it catches on and increase visibility for our cause.
  17. Kalliope

    Norwegian health authorities classify Lightning Process as alternative treatment

    NAFKAM (Norway's National Research Center in Complementary and Alternative Medicine), The Norwegian Directorate of Health and the Consumer Ombudsman state in an update of today about Lightning Process (LP) that it is to be considered as alternative treatment. This is great news, as the laws...
  18. Kalliope

    David Tuller - Trial By Error: Goodbye, Australia; and Two Updates

    Trial By Error: Goodbye, Australia; and Two Updates After I posted yesterday’s blog about Professor Lloyd’s perplexing memory lapse relative to PACE, Tom Kindlon and I exchanged a few messages. He told me that he had written a letter to the Journal of Internal Medicine after Professor Lloyd’s...
  19. Kalliope

    Maya Dusenbery: When Doctors Dismiss Women's Pain

    Lenny: When Doctors Dismiss Women's pain by Maya Dusenbery Many conditions that disproportionately affect women — including endometriosis, fibromyalgia, vulvodynia, interstitial cystitis, and chronic fatigue syndrome — are still very poorly understood, yet receive minuscule amounts of research...
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