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In what must be the Freudian slip of 2022: Here's a screen shot, just in case you think it is too incredible to be true.

These authors have jumped on the low cortisol finding in Long Covid of the Iwasaki paper and put it together with the IOM report supposedly saying that low cortisol levels are a feature of ME/CFS: Reference #10: Beyond myalgic encephalomyelitis/chronic fatigue syndrome: an IOM report on...

[Preprint] Distinguishing features of Long COVID identified through immune profiling, 2022, Iwasaki et al

Yes, I think for a start they have confused POTS with POT (by which I mean, an incident of orthostatic tachycardia). But yes, the finding does seem very odd and perhaps raises questions about the validity of the whole study. On the other hand, is it possible that healthy people do sometimes...

From the review in the first post - I'm not sure if that comment about very few accepting the disability as real is talking about Philippa's experience in the film or about the reviewer's view of ME/CFS, or both.

Cognitive Behavioural Therapy to Optimize Post-Operative Fracture Recovery (COPE): Protocol for a Randomized Controlled Trial :rofl: we have joked about 'would you use CBT to fix a broken leg?', and now it seems the answer is 'yes'. Possibly, but I don't think they need meetings. Once you...

We've made a thread for that Masuki 2007 study here: Excessive heart rate response to orthostatic stress in postural tachycardia syndrome is not caused by anxiety, 2007, Masuki et al

(An old study, but one that deserves to be remembered as it addresses the question of whether the increased heart rate of POTS could be caused by a fear of standing. Yes, that idea sounds ridiculous but a recent paper proposed it. Thanks to Sid for bringing this 2007 paper to our attention.)...

Thanks for the paper @dave30th, it's really useful.

Thanks for posting @Samuel. The study is interesting, although the sample sizes are pretty small and there was a problem with measurements not being taken at the same time of day. No differences in the occurrence of POT: No difference in wrist temperatures: This is the finding from the...

I feel very ambivalent about statements like these being used to counter the Lightning Process. Yes, they might persuade some doctors to treat ME/CFS seriously, and yes, there might turn out to be some valid findings in amongst the ME/CFS publications of Tate and Gradisnik. But the sample size...

I think there's actually a lot going on. Some of the therapists genuinely wanted to feel that they were helping the poor people who don't know how to eat, sleep and get off the couch properly. An overlapping number wanted to prove that they were right, and all their critics were wrong, and get...

The association of fermentable carbohydrates with IBS has been around for a while e.g. the FODMAP diet e.g. https://www.monashfodmap.com/ibs-central/i-have-ibs/starting-the-low-fodmap-diet/ "FODMAP stands for fermentable oligosaccharides, disaccharides, monosaccharides and polyols, which are...

I think it is a hole in the current approach to ME/CFS research - done well, a set of agreed outcome measures would be great e.g. a good subjective fatigue measure, actimetry measures (e.g. time with feet on the ground, daily steps), some subjective global health measure, maybe a cognition...

And since when can psychologists diagnose CFS?

Yes, it is a good letter. And even while being annoyed, I could see from the article posted in the first post that this psychiatrist has moved a long way from where his training placed him to start with. I still feel uneasy though. I would have thought that many, maybe even most, of the people...

That looks great, @Art Vandelay

Yeah, it annoyed me too. Also this bit where he's suggesting doctors are just "too logical", and that's why they automatically assume psychosomaticism when they see a young woman who seems anxious about her health. I think I may have thought a swear word or two when I read that. No, we don't...

Further on the prevalence and issue of subsets, some points about the problems with so many of the epidemiological studies done so far. Yes, the issue of Long Covid is substantial, but it doesn't help with a story of significant disability and a biological cause to be suggesting that half of...

Just jotting some points and noting the points made in this recent post that I think might be a useful part of responses: the fact that LongCovid is a term covering a whole range of health issues, but post-Covid-19 ME/CFS is a significant subset (the tag "LC=ME/CFS" will give some evidence)...