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  1. Midnattsol

    News from Aotearoa/New Zealand and the Pacific Islands

    That would indeed be me, I'd be happy to be connected to the gastroenterologist dietician :)
  2. Midnattsol

    ME conference in Sweden 11-12th Oct 2023, The Hidden Disease

    I hope Kielland and the rest of the team make more appearances with the Tjenesten ad MEg work, preferably also in Norwegian media :whistle:
  3. Midnattsol

    Long Covid in the media and social media 2023

    That's the one, thanks Kalliope :) The NAV statistics came out 1. June, so they took their time to write an article about it. The March statistics were disseminated a lot quicker. And as always, I'm happy by the lack of public health officials saying long term effects from covid is just anxiety...
  4. Midnattsol

    Long Covid in the media and social media 2023

    I wish I could find it again (NRK's search bar is terrible), I'm pretty sure it was data pulled from our own national registries. Sick leaves are on record levels since swine flu, and one of the more likely diagnoses long covid patients could end up getting ("tired") is partly behind the...
  5. Midnattsol

    Long Covid in the media and social media 2023

    Can't find the article again, but our national news wrote that people on sick leave from covid had a sick leave four time as long as others.
  6. Midnattsol

    Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome 2023 Bakken, Strand et al

    There is this one about the FOI, not sure if it's the one you've seen though: Sorry, not up for translating right now :)
  7. Midnattsol

    Norwegian journal for journalists covers the ME debate

    Thank you for putting together this thread, Kalliope :)
  8. Midnattsol

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I'm a bit annoyed that the title on the case of the journalist that complains to Dagbladet is not clear it was how they discredited him and his work on ME. He wrote about a patient who had cancer and ME who explained how different the health system treated her when she got the cancer diagnosis...
  9. Midnattsol

    Long Covid in the media and social media 2023

    Some happy news. A local politician I mentioned in this thread previously, who had to quit his job due to long covid and has been open about in in the media, have become well enough to start working a bit again. He got ill in 2020 if I remember correctly :)
  10. Midnattsol

    News from Scandinavia

    Some discussion on Twitter (the news site have not shared this article on their own Twitter page, I'm speculating but might be because in the article it says how much ME pieces create "twitter storms"?) Still, there has been discussions on twitter: Edit: The story is of course liked and...
  11. Midnattsol

    News from Scandinavia

    The editor of Khrono, and the journalist who has written more or less all of their stories on Lightning Process, have been interviewed on harrassment from pwME and the difficulties of writing about ME/CFS research. There is a lot of patient blaming and making themselves be without guilt (they...
  12. Midnattsol

    Long Covid in the media and social media 2023

    A quite good article in Aftenposten about long covid today. A swedish woman who have been ill since the end of 2020. Cognitive impairment. PEM. Talks about her situation, the long covid clinic she is at in Stockholm, and a doctor from the clinic is also interviewed. The Norwegian long covid...
  13. Midnattsol

    Ultra-Processed Food: A Recipe For Ill-Health?

    A large reason for why we need healthy convenience foods. If I didn't have someone who can cook for me when I'm not able to myself my nutrition status would be poor.
  14. Midnattsol

    Cot Death Genetic Link: Kathleen Folbigg: Mother who served 20 years for killing her four babies pardoned

    Having more than one dead sibling, and then becoming ill as a teen, the amount of snide remarks I've heard about my mother being hysterical or overreacting "due to the family history" has been sickening. :banghead:
  15. Midnattsol

    The Norwegian Institute of Public Health announces study to see if masks reduce infection

    It was surgical masks, and you did not have to wear them all the time (that would be too much effort), so for example I could meet people at work with the mask around their neck because to wear it at work was not a requirement. Completely useless, and the idea that this is "real word use case"...
  16. Midnattsol

    Long Covid in the media and social media 2023

    A new "how did we do with regards to the covid 19 pnademic" report has come out here in Norway, and one of the authors have been retweeting the interview with Iwasaki on infection sequelae and have had some comments about the importance of caring for long term ill :) She has been supportive of...
  17. Midnattsol

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Nina Steinkopf has written about the studies by the author (Stiles) responsible for the correction due to his COI at NTNU's own news site Universitetsavisa, with a focus on the thread's study as it is the only one of many where a correction has been done. She also points out that is is not...
  18. Midnattsol

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    The Tjenesten and MEg/Services and ME project has a short section on this in their article "Do diagnostic criteria for ME matter to patient experience with services and interventions?, 2023, Kielland et al" that we have a thread on here. So they may not use the word "harmed", but having a...
  19. Midnattsol

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    Rigorous is not a word I would use to describe FHI when it comes to post infectious disease. And they could spare themselves saying this is an area they prioritize. :wtf:
  20. Midnattsol

    Long Covid in the media and social media 2023

    TV2 also had a story on two other kids with long covid, both 13. De glemte barna: Foreldre fortviler: – Jeg kjenner ikke igjen barnet mitt The forgotten children: Parents despair: - I don't recognize my child
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