Search results

  1. rvallee

    Cognitive Behavioral Therapy "Evidence-Base" Is Exaggerated (Psychology Today)

    Not about ME but the general evidence basis for CBT. This aligns with work by Keith Laws, who regularly reports on CBT trials failing left and right and being shown to be no better than, well, nothing. There is growing evidence that ALL the evidence for the efficacy and safety of CBT is...
  2. rvallee

    What ME/CFS research, funded by UK sources, is currently in process (as of end June 2019)?

    Something something auras and Tarot cards. Or just about as credible anyway. As we've seen many times when the quiet part is said out loud: it's not about the substance of the BS, it's all about being confident in narrating the BS. The semantics are the trick they play, none of them actually...
  3. rvallee

    Gulf war syndrome vs "ME/CFS"

    Kinda. Just that it applies to those sabotaging both diseases, not their victims.
  4. rvallee

    Nature - News feature: Does psychology have a conflict-of-interest problem?, 2019, Tom Chivers

    Williamson seems kooky but I'd take her over any of the psychosocial lot any day of the week. She at least seems to place some inherent value to human life. It's a different kind of kooky, at least it's benevolent in intent, rather than being entirely motivated by ideological self-interest and...
  5. rvallee

    #RCPsychIC hosting a panel on patient engagement with Rob Howard, Mental Elf and Simon Wessely

    Like saying you had a great discussion with someone who listened to everything you said and had nothing to say in return. That's not a discussion, that's either a lecture or a monologue. Above all it really shows what they really think of patient engagement: do as I say and don't talk back...
  6. rvallee

    Draft of New IDSA Lyme Guidelines

    Hindsight will be brutal on all those decisions. Creating medical guidelines based, above all, on nothing more than "I believe X" and "I don't believe Y". Logical fallacies make for very poor cement in the mix. The universe doesn't operate based on anyone's personal beliefs, justified by what...
  7. rvallee

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Notable, from Tovey, May 24 2019: The emails are a fascinating read and just about the most damning they could possibly be. It is inexplicable that, with all those flaws, Cochrane should have published this review in the first place and the matter needs to move beyond correcting the mistake but...
  8. rvallee

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Reading the included document and this is a remarkable quote: The authors acknowledge that there is selective reporting but don't believe that it's a problem. When you are acknowledging that you did selective reporting you have already lost the plot and truly have nowhere else to go. This is...
  9. rvallee

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Not surprised but this should be a big deal, if laws and regulations matter anyway. Governments are supposed to make decisions based on real data and justify why those decisions were settled on. By extension all government bodies are subject to this obligation of, in a nutshell, not making stuff...
  10. rvallee

    #RCPsychIC hosting a panel on patient engagement with Rob Howard, Mental Elf and Simon Wessely

    Oh, no. Can you imagine being told you're wrong? The gall. Bad patient, bad.
  11. rvallee

    Medically Documenting Disability in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases May 2019 Comerford & Podell

    I can't read it all, it's too long for me, but from the first few parts this is a seriously well-researched and -informed portrait of how disabling ME is. It describes the variability and severity of impairment and how there need to be special accommodations to genuinely help us. This is...
  12. rvallee

    Gulf war syndrome vs "ME/CFS"

    Two links I have bookmarked: Exercise–induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects: https://www.nature.com/articles/s41598-017-15383-9 Brain chemistry study shows chronic fatigue syndrome, Gulf War illness as unique...
  13. rvallee

    A Girl Behind Dark Glasses - Jessica Taylor-Bearman

    It takes 1 minute to vote. All it asks for is name and email. Quick and easy.
  14. rvallee

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Don't make me count to 3! 1.... 2... 2.5... 2.66.... 2.75... 2.88... 2.881.... 2.882...
  15. rvallee

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    It would be well worth the money but I don't know who could spare the funds for this. Of course this should normally be a required step in the psychosocial alternative model of medicine, if it were a legitimate area of research. Some of the studies don't even involve genuine control arms but...
  16. rvallee

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Uhhhh... that and avoiding deterioration, with a direct corollary that the treatment itself should not either, as well as many other types of benefits. Increasing activity is the tail end of treatments, a whole lot usually happens on the way there. He speaks of later stages but increasing...
  17. rvallee

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Right! It wasn't in the review itself it was simply in the library, listed as a relevant paper for CFS.
  18. rvallee

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Induced by Repeated Forced Swimming in Mice, 2019, Hara et al

    That makes exactly as much sense as claiming to have a Parkinson's mouse model by subjecting mice to cold and therefore have them shaking uncontrollably. And for good measure, it's equally cruel. Superficial similarities are a specific problem of classification and no expert should be confused...
  19. rvallee

    The ME Patient Foundation

    Probably diagnostic. Some MS cases are fairly straightforward but most aren't so it's not universal. It leads to the same uncertainty and have-you-tried-yoga? until a diagnosis is officially made. Essentially it takes specialist expertise to confirm a case, the biomarkers aren't sufficiently...
  20. rvallee

    Nature - News feature: Does psychology have a conflict-of-interest problem?, 2019, Tom Chivers

    I wouldn't say it has a conflict of interest problem. I would say it has many. And a crisis of reliability. And a refusal to acknowledge it or change anything about it. And promoting the creep of pseudoscience within medicine by merely adorning a psychobabble hat, rather than the usual spiritual...
Back
Top Bottom