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I read about a man who had fatigue every day between about 15:00 and 19:00. At some point the fatigue turned into paralysis, almost every day. He saw 80 doctors and of course heard all the usual things about these symptoms being caused by stress and psychological factors. He actually had a...

The slow pace of progress is also because they are very thorough and want to publish findings that are really true and relevant. I like that they are listening to patients and testing unconvential ideas. One reason for the historical lack of progress could very well be that the illness is...

Some predicted that functional neurological disorder would be promoted as replacement for ME. Presumably they would stop diagnosing ME and instead prefer to give a FND diagnosis, so that patients can continue to be given CBT. Until the FND patients revolt much in the same way we did.

The only thing that was different about today was that I had a lot of carbonated water.

It's mostly a headache now.

I was sitting and it started suddenly for no apparent reason. I had a snack earlier but it seems strange that food could cause something like this.

It's improving and being replaced by a mild headache and pressure in head sensation.

It doesn't really spin of course, now that would be concerning. It just feels like it's spinning. It started a few minutes ago and is different from what I had experienced before, mainly more intense and not apparently related to movement. Also my palms are moist and I feel warm. Should I be...

Have they actually found evidence or is this just rebranding #412 of the same old idea? Evidence is needed because absence of evidence tells us precisely nothing, other than that we don't know.

If I remember right, the NICE guidelines explicitly say that patients have a right to decline treatment.

NICE needs to do something about FII. It seems to be totally out of control. Serious error in the system. The unusual patterns of healthcare utilization, school attendance, investigation and so on are not unusual, they are often the norm in ME/CFS. Declining GET for one's child is not abuse.

This is extremely disturbing. Their definition of child abuse overlaps with what I would consider normal in circumstances where a child is ill and doctors can't quite figure it out. She even admits that "FII or perplexing presentations are remarkably similar". I assume that by perplexing...

To those who fail to control for biased reporting in their studies, the mind will appear like a powerful entity that can influence symptoms and course of an illness. After all, putting patients into a different state of mind seems to have all these effects on symptoms (as long as one uses...

A study that is of interest because it measured activity levels with an accelerometer. https://www.ncbi.nlm.nih.gov/pubmed/22032215 Unfortunately the authors did not investigate further to find out the "direction of these relations".

I'm pretty sure I have some sort of food intolerance, but it's so difficult to figure out. CBT is probably much easier, but unfortunately, worthless. I'll need some real evidence before I start believing that a major cause of say chronic diarrhea is anxiety and worrying. People shit themselves...

Apparently an example of unhelpful behaviour and thoughts is people with diarrhea immediately rushing to the toilet when they felt the urge.

HLA variants associated with ME/CFS

I would like to hear some examples of what would be considered the unhelpful beliefs that maintain the illness. There are therapist manuals but I've not found any copies.

@Jonathan Edwards remember that you were skeptical about IV saline? (I'm not sure if you were concerned about potential harm from having an infusion as opposed to just drinking salt water, or skeptical about the idea that salt water would be genuinely helpful)

At least some of the ME/CFS forms are heritable. This is fairly obvious from the many reports of families where more than one person has it. There are even more families where one person has full blown ME/CFS and at least another person has some vague fatigueing illness nobody can diagnose...