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Also this document is a pretty good example of how the same people who like to talk about transcending mind-body dualism are in reality constantly making the distinction between medical and non-medical, organic and not organic. Their whole job depends on this separation, in fact. Anyway, this...

I'm speechless. That's just one item in a long list of vague factors. Nobody can escape the MUS diagnosis.

I find this hilarious. Sharpe promoted an illness model where the patient falsely thinks they are ill. It is exactly the patient blaming, all-in-the-head model he claims it is not.

It would be good for us if these people went all-in on the Lightning Process. Then it would be obvious to almost everyone that they are out of touch with reality. They live in a fantasy world where thoughts can cure or cause disease, and see themselves as pioneers that have special insight...

It would be nice to see if this woman can smell any other diseases.

Sharpe is apparently blocking everyone on Twitter that shares this article.

This is what activism looks like in my mind

It was a joke. I should have added a smiley. If patients weren't so sick they would have been able to change the system long ago.

There are only ME inactivists. If activists existed, we would have won long ago.

What a shameless liar.

I think that in the patient community strict diagnostic criteria are seen as solution to various problems. As solution to so much resources going into CBT/GET and as counter to its illness model. The thinking here is that CBT/GET helps some but not those with proper ME. I think it's more...

Thank you Tom and Carolyn.

Someone else mentioned this, and I have experiened it as well: that after a brief but intense flu, I feel much better and I think it may be more than than merely not having the flu. Is it possible that this event temporarily resets a malfunctioning system?

I had the impression that the illness responds to stimulants that temporarily appear to work with an even stronger pull towards a sickness state. Much like trying harder to function normally will soon result in a relapse that puts an end to trying harder for a while. That may be why it's...

Maybe to the CDC, CBT and GET always meant something else entirely. "When I use a word," Humpty Dumpty said, in rather a scornful tone, "it means just what I choose it to mean—neither more nor less." "The question is," said Alice, "whether you can make words mean so many different things."...

Is this the first political party to make ME/CFS part of its platform?

The campaign isn't driven by this, but what is the problem with wanting biomedical research rather than psychological research? Patients want research to go in the direction they think is best and it's this one and there is nothing wrong with that. The latest Chalder paper just demonstrates how...

If you want to express that ME is not psychological condition, this is how you should do it.

If true this seems to align with the view that the diagnostic criteria are fairly bad.

The requirements to enter the study: The first step is a pre-screening process, and then a 5-10 day initial phenotyping inpatient visit. I understand that it's at this stage where the previously missed diseases were recognized.