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It may also be advantageous for insurance companies if the treatment is poorly tolerated. They can then portrait the patient's withdrawal from treatment as a lack of motivation to get better, citing once again the PACE trial as evidence that the treatment is well tolerated and safe. In general...

@Jonathan Edwards a comment would be appreciated.

One has to take into account that all sorts of treatments appear to have moderate efficacy if we go by such surveys. Patients are eager to believe there is something that can help them, and the fluctuating nature of symptoms makes it easy to erroneously attribute an improvement to whatever...

Essentially.

One of these days I want to teach a computer how to generate these kinds of articles. Then post it somewhere public and see if there is enthusiastic support for it. :D (okay that's more daydreaming than a real plan, please bear with me)

This agency does not appear to have performed an independent analysis and was apparently deceived by the carefully crafted illusion that PACE is OK. That people who look only superficially into PACE conclude that there aren't major problems has happened before. A forensic analysis is required...

I can't wait to read the full article.

Evidence that they are trying to silence critics by spreading false information?

Smearing anonymous patients with a stigmatized illness is easy. Let's see how easy it is to do the same to David whose comments are in the public domain.

As low as the bar for recovery apparently :D. They are playing word games.

The Open Medicine Foundation is doing that at the moment, in their multi omics study.

Some interesting comments in this paper. It's full of interesting observations that closely align with my own thoughts. This is interesting because I suspect that the subtle tension and increased heart that for me appears to precede crashes is due to autonomic nervous system activity. Since...

The homework of children at school is subject to better quality control than this.

Cort has also written an article on this paper https://www.healthrising.org/blog/2019/02/01/hypocapnic-cerebral-hypoperfusion-orthostatic-intolerance-chronic-fatigue-syndrome/

https://doi.org/10.1371/journal.pone.0204419 My take away from this: patients with hypocapnic cerebral hypoperfusion present the same symptoms as patients with POTS but can fail a tilt test due to absence of tachycardia. ME/CFS is also mentioned.

This would be an opportunity for Science for ME to weigh in. The PACE briefing perhaps? https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/

@Jonathan Edwards good opportunity to weigh in on the quality of the RCTs behind BPS treatments. PS: @Chris Ponting Expert comments are worth much more than patient comments.

We do not believe ME is a psychological condition. Now let's get back to studying your thoughts and feelings so we can improve the CBT with which we want to cure you. :rolleyes::D

A device like this would be useful to track activity levels. https://www.actigraphcorp.com/activity-monitor-comparison/

Bentall is a FINE trial author. Now he has allegedly retired from CFS research due to behaviour from patients. That FINE and PACE showed the treatment didn't work couldn't have anything to do with that. ;)