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  1. Hoopoe

    BBC East Midlands Today report on CBT for “health anxiety MUS

    I would like to see a comparison of CBT for anxiety and a skilled speaker trying to persuage the patient to simply hide and downplay their anxiety.
  2. Hoopoe

    Trial By Error: Some Thoughts About an Upcoming Article

    The real story about these tweets to Sharpe is that he sought debate with sick and easily stressed patients and behaved rudely and dismissively. He did this for several months and in that timeframe got hundreds of responses which included some angry ones. That he now uses as evidence that...
  3. Hoopoe

    Trial By Error: Some Thoughts About an Upcoming Article

    Wessely was PACE trial centre leader and is acknowledged as having contributed to the trial design. I cannot imagine that the PACE authors would not have taken the opportunity to present evidence of death threats to the tribunal (even if the threats were only against someone that played a minor...
  4. Hoopoe

    Trial By Error: Some Thoughts About an Upcoming Article

    I think it's perfectly possible that such a video was produced and planted there by the BPS people. They have fabricated evidence before (see Crawley's claim of having received a threatening letter). PACE showed how dishonest they are. It's difficult to explain why such a video, if it was...
  5. Hoopoe

    'E-cigarettes help more smokers quit than patches and gum' (30.01.2019) Kelland / Reuters

    I'm glad I never tried a cigarette. One positive of ME/CFS is that it makes cigarette smoke headache inducing and disgusting.
  6. Hoopoe

    Trial By Error: Bristol Investigating Crawley Papers

    How unusual is it to re-use the same ethics approval for many projects?
  7. Hoopoe

    Trial By Error: Some Thoughts About an Upcoming Article

    It would achieve what the BPS people want: that the press talks about anything other than BPS science being a fraud. I'm sure they don't mind articles about academics trading insults and accusations.
  8. Hoopoe

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    It sounds like the people in charge studied business, not medicine.
  9. Hoopoe

    Trial By Error: Some Thoughts About an Upcoming Article

    Ignore it where possible, it's just a distraction. Keep writing! They love this kind of controversy, not the other kind about outcome switching and failure to control for placebo effects. So keep writing about the latter. PS: you're going to have to write some response to the accusations, but...
  10. Hoopoe

    Spoonseeker: 'Going Back in Time…' blog about MUS, January 2019

    Sure we can. If there's no money to be made from MUS diagnoses then they will stop inventing these diagnoses. That can be achieved by demanding that clinics must not offer treatments that haven't passed a well designed RCT.
  11. Hoopoe

    Royal College of GP training facility (2018)

    Can you give some more context? I don't understand what this is about.
  12. Hoopoe

    Is PEM cumulative? - public thread

    Maybe we feel worse not because of the accumulation or depletion of molecule or signal X, but because the body senses that now it really needs to rest so that it can take care of this imbalance, and it can achieve prolonged rest by making us feel like crap. A bit like most symptoms during a...
  13. Hoopoe

    Is PEM cumulative? - public thread

    I also see this pattern of feeling not so bad or even OK while exerting, but being hit with exhaustion as soon as the body shifts into a resting state. I'm also seeing the pattern of waking up and feeling awful because the day before I did too much. But during the day I probably felt good...
  14. Hoopoe

    Is PEM cumulative? - public thread

    If I were to make a simulation of ME/CFs and PEM, then it would work a bit like this: Engaging in activities generates exertion points proportional to the intensity and duration of exertion. Sleep and rest removes exertion points proportional to the quality of the rest and sleep and duration...
  15. Hoopoe

    Is PEM cumulative? - public thread

    Take a look here https://www.s4me.info/threads/pem-cumulative-or-not.7524/
  16. Hoopoe

    Is PEM cumulative? - public thread

    Relevant to GET and measurement of activity patterns: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1280928/ In the original study, activity as measured by accelerometer increased, but symptoms worsened. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC555551/
  17. Hoopoe

    Thread for all minutes of the UK CFS/ME Research Collaborative [CMRC] Executive Board Meetings

    Does "relevant people" include BPS researchers or not? I hope not.
  18. Hoopoe

    Assessment of Bidirectional Relationships Between Physical Activity and Depression Among Adults (2019) Choi et al

    Sounds as if it's still not clear if exercise protects or if there is some process that causes low physical activity levels and also increases risk of depression.
  19. Hoopoe

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    I just realized that the PACE authors are now probably living in fear of real consequences, because we're very close to the UK government waking up and realizing that it has been manipulated and lied to by dishonest researchers.
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