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  1. Hoopoe

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    I often have dry eyes but it's not something I bring up because it's not that important. I have many such minor symptoms, and if I were to mention them all, I would risk being labelled as psychosomatic case.
  2. Hoopoe

    Dry eye syndrome and the subsequent risk of CFS — a prospective population-based study in Taiwan (2018) Tse-Yen Yang et al

    Background and Aim The clinical association between dry eye syndrome (DES) and chronic fatigue syndrome (CFS) remain unclear with less evidences. We aimed to investigate the relationship between CFS and DES using a national insurance and prospective cohort study. Methods Data from the...
  3. Hoopoe

    Netflix "Afflicted" - ME included

    I haven't watched this but it sounds like it may have done more harm than good. It would have been better if it didn't concentrate on personal lives and treatment attempts so much and focused more on research and attempts to improve the political situation.
  4. Hoopoe

    The European Association of Psychosomatic Medicine (EAPM)

    The author thinks that getting patients to recall different things may lead to a clinical benefit. I am now doubting the author's sanity. They seem to have discovered that patients have symptoms, unlike healthy people. I doubt that these results will advance our knowledge. OD = orthostatic...
  5. Hoopoe

    The European Association of Psychosomatic Medicine (EAPM)

    I looked at the ones where CFS was mentioned. Was not impressed.
  6. Hoopoe

    The Norwegian ME Association publishes survey on rehabilitation services - 2 300 respondents

    I imagine it's a bit like going to the restaurant and having a meal that isn't bad but also not good. The waiter might ask out politeness if the meal was good, and you probably respond out of politeness that it was. The patients can be "satisfied" because they felt that effort was made to help...
  7. Hoopoe

    Effects of unsupportive social interactions, stigma, and symptoms on patients with myalgic encephalomyelitis and cfs, McManimen et al, 2018

    Wessely says that articles in the press endorse a medical model of CFS and reinforce stigma about psychological illness. In my view the BPS model is intrinsically stigmatizing and much of the stigma, at least in medical circles, originates there or from similar ideas about psychogenic illness...
  8. Hoopoe

    The European Association of Psychosomatic Medicine (EAPM)

    A pathetic collection of make-believe articles whose only purpose is to ensure employment for incompetents that couldn't make it in real medicine.
  9. Hoopoe

    Petition to ask government agencies adopt ICC

    This study is nonsense. Patients that agreed with the statement that "exercise brings on my fatigue" on the fatigue severity scale were considered to suffer from PEM. The problem is with the study, not the IOM case definition. Nowhere does the IOM report suggest that this is an appropriate way...
  10. Hoopoe

    Petition to ask government agencies adopt ICC

    These treatments were recommended because a group of British psychiatrists promoted them and produced research that appeared to confirm their efficacy. This started in 1989, well before the Fukuda criteria were created.
  11. Hoopoe

    Association between cytokines and psychiatric symptoms in chronic fatigue syndrome and healthy controls (2018), Groven et al

    I looked at one of the questionnaires they used, the SCL-90-R which gives scores in categories such as "somatisation", "anxiety", "obsessive-compulsive" and so on. If you report symptoms such as headache, weakness, restlessness, dizziness, decreased sexual desire, chest pain, etc this counts...
  12. Hoopoe

    Solve ME/CFS Initiative - Editorial: PEM. It's time to Retire the Term

    This seems relevant: https://en.wikipedia.org/wiki/Law_of_triviality
  13. Hoopoe

    Who was it that said being in support groups leads to poor outcome?

    Re. the Wessely quote above. Typical for the BPS people, they do not understand human behaviour: the way patients behave is simply a reaction to the circumstances, which are unusual and therefore patient behaviour will also be unusual. Other illnesses don't meet such neglect and condescending...
  14. Hoopoe

    Petition to ask government agencies adopt ICC

    Jason did poor work criticizing the IOM criteria. He used vague definitions of PEM and then finds that lots of other illnesses have PEM too. I am not sure asking patients about fatigue after exercise or activities tells us much about PEM. That said, we don't have a good questionnaire to...
  15. Hoopoe

    Who was it that said being in support groups leads to poor outcome?

    At first I believed I was ill, but then was told it was a personality problem, and so I tried to believe that instead (I was just an innocent child), and it only made me feel bad about myself and made me sicker as I continuously tried to resume the old activity levels. I fervently believed I...
  16. Hoopoe

    BMJ: Patient's roles and rights in research

    Science journals are really good at saying all the right things, but not nearly as good at actually implementing them.
  17. Hoopoe

    Medscape: A 36-Year-Old Woman in Undetermined Pain: Osmosis USMLE Study Question of the Week

    It clearly illustrates that students are taught a logical fallacy: "If the problem cannot be identified, it means that it's some variant of psychogenic illness." This is the polite version of what I wanted to say. The original version included the term mass delusion.
  18. Hoopoe

    Who was it that said being in support groups leads to poor outcome?

    Speaking of prejudices. Their illness model is simply a rephrasing of the usual prejudices patients face: laziness becomes deconditioning, and hypochondria becomes unhelpful illness beliefs.
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