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I'm a bit disappointed that this thread has not yet yielded any grand theories on how all these skin problems tie into ME. :D I'm joking. Skin problems are fairly common aren't they?

Googling for that led me to this image on Wikipedia which is pretty close. I just didn't have a many blisters, and they were not raised much if at all. So seen from the side, the blisters in the picture look different, but seen from top they look identical.

@TiredSam I had the exact same thing for years. Hardened flat vesicles just under the skin, filled with liquid. Not painful. Mainly on fingers and a few on the palm of the hand as well. Mine were less dark though.

A good chunk of these chronic preventable diseases is due to economic inequality. People would eat healthier, do more sports if they had the time and money and lived not too far from nature. Further research is not particularly needed. Just a willingness to address inequality.

The vagueness of the plan suggests that the concrete reality of it will be upsetting.

This study concludes that gluten content in wheat doesn't seem to have increased. Can an Increase in Celiac Disease Be Attributed to an Increase in the Gluten Content of Wheat as a Consequence of Wheat Breeding? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3573730/

It's another anomaly that doesn't pass the common sense test. Standard medical care of for ME/CFS is useless, and such marked regression to the mean seems unlikely and is inconsistent with other measurements, yet 40% of were supposedly PEM free (it was no PEM at all, right?).

Do you know how they assessed severity of PEM? What questions were asked, how was PEM defined?

Self reported PEM decreased more in the CBT and GET arms, as assessed by questionnaire. This doesn't show that CBT/GET reduce PEM because of the subjective unblinded trial design. I am also curious how they defined PEM.

I think the recovery claims are for depression and/or anxiety only.

Can you elaborate on this?

I think it's correct to say that this began with Selye, even if he focused on the endocrine side of things. Later on other work was done examining cytokine response to stressors and presumably that's where the stress leads to inflammation narrative comes from. My initial feeling (or prejudice)...

It all began with Hans Selye. One of these days I'm going to read the relevant literature. I think it may be possible that these experiments (like Beecher's work on placebo) may have led to misleading or exaggerated conclusions. Because people keep trying to treat disease by treating stress or...

It is possible to examine the liver of deceased patients. There is a group in the UK that is doing post mortem studies. Charles Shepherd should be able to tell you more.

Also, just because patients feel better on some measure after some feel-good intervention, which could be talk therapy or a stay at a spa, does not mean that the illness is being successfully treated. Referring to such an intervention as treatment for an illness would be misleading.

My favorite quote from his website: "The placebo effect is clearly psychological in nature, and it somehow involves the thought processes of the patient causing the body to heal itself." Ironically, a psychology enthusiast that fails to understand psychology of biased self reporting of health...

Do you think you could get researchers to do a ME/CFS liver biopsy study?

I don't remember if I was gluten free or not. I am now because I cannot afford any further GI inflammation. I have a genetic predisposition for celiac disease. Yes, this happend after I followed de Meirleir's treatment plan, which was a horrible mistake.

This is exactly what happened to me. I drank a lot of kefir because it was so tasty and helped with loose stools, but somehow I became sensitized to it and now all dairy products provoke reactions. The full reaction is delayed and very unpleasant. After avoiding dairy for a while, tollerance...

He made a new video about his CFS theory. He claims that CFS is caused by changes in brain structure and wiring and that it's possible to reverse these changes with his program, which seems to consist of advice such as avoiding stress and pacing.