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If PACE taught me anything, besides unblinded trials relying on questionnaire being unreliable, it's that science is hard and even the pros make a lot of mistakes. Many of these mistakes are probably due to a lack of time. Having a good understanding of a problem is very time consuming.

The highly competitive capitalist society is failing so many. Even medical science might not be a morass of false and exaggerated claims if it weren't so competitive.

I looked around a little and found nothing related to ME/CFS. She appears to be involved in IBS research https://www.contactme-ibs.co.uk/ My guess is that as consequence of interest in IBS she has contact with patients that fit some diagnostic criteria for ME/CFS. He is Ireland's...

I see no butcher though. Someone that would go over the last Wilshire et al PACE paper.

I fear that this one will be all about defending business interests :sick:

I think this might be the rather ordinary hypnagogic hallucinations.

Shorter will write an article on Psychology Today on how this shows that real imaginary illnesses are best treated with culture matched elaborate placebos rather than the sterile CBT/GET.

Exactly. The error is deliberate.

Have you read the paper?

That nobody is stopping Sharpe could mean that PACE authors are now in the phase where it is becoming apparent that the defenses will not hold out. That's the phase where they start prioritizing self interest over group interest. Wessely seemed to mainly want to distance himself from PACE. He is...

The presence of nonsense terms suggests they are automatically generated with an imperfect algorithm.

Brilliant. She is so valuable. With MPs on our side, it should be easier to pressure the Lancet and organizations in the UK that are still ignoring the problem.

Judging from the description, this is the Mark Davis T cell receptor stuff.

It is not tinnitus. It is some form of abnormal brain activity as far as I can tell.

What is this symptom called, where I wake up in the night, and feel vibrations in my head, with a high pitched undulating sound that rapidly increases its pitch and then stops with a pop? Otherwise it felt a bit like waking up from an unpleasant dream. There is mild anxiety, but no terror or...

A metabolic trap, potentially curable with a simple and brief therapy? Sounds too good to be true. They really are hyping their work too much.

It wasn't that long ago that PACE was a great RCT, a thing of beauty, conclusive evidence.

It does sound like the MRC and CMRC have changed their attitude but until this translates into good research people will be skeptical.

Sounds like the dysautonomia people could learn a thing from the ME/CFS community ;).

Interestingly one tweet also said that POTS patients tend to be on gluten free diets, and that this might reflect poor carbohydrate tollerance more than a gluten sensitivity. POTS patients also have abnormal glucose tollerance according to another tweet. I keep saying that there is also...