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Reading this one gets the impression that ME is primarily a dysautonomia. One the tweets said that adrenergic antibodies are found in almost all POTS patients.

The ICO vs QMUL ruling debunked the crazy militant story. Various articles in science journals debunked the PACE claims and vindicated patient concerns. The journalists seem to now understand that the Science Media Center is an unreliable source of information on the topic. The IOM report may...

Presumably, he will do the same with ME.

These psychosomatic theorists give me a backwards religious nutter vibe. The similarity is in the belief in mysterious unseen forces, which only they can understand, and in their tendency to attribute illness to the moral failure of the sufferer, and their lack of interest in objective science...

Boom and bust to me means markedly higher performance than normal, followed my markedly lower performance than normal. That doesn't describe what happens. The illness with boom and bust pattern is bipolar disorder. Push and crash to me means struggle followed by collapse, which is a better...

The Japanese brain inflammation study is important to replicate. Could lead to a diagnostic test and low grade brain inflammation could explain a lot. Mauren Hanson's recent work on PEM using metabolomics, autonomic testing and CPET (still ongoing, but some preliminary results were published)...

FOI requests to see what kind of proposals they are getting and rejecting could be informative.

If society doesn't take action, it must be because there is so much doubt and uncertainty, or doesn't believe ME is a serious problem, or is hardly even aware of ME. I feel like part of the problem is that the BPSers were very effective at influencing public opinion. Their narrative was...

Michael van Elzakker said that one problem in the field is lack of serious research into root causes. We have many studies documenting the effects of the illness (usually small and often poorly replicated).

The birth of the "unbecoming" meme? I welcome it, for the vexatious activist meme has become stale.

This one stood out in particular: Sir Edward Davey (Kingston and Surbiton) (LD) I congratulate the hon. Member for Glasgow North West (Carol Monaghan) on securing the debate and all hon. Members who will participate in it. It is essential that we speak for the millions missing, and it is great...

I took Pound's comment about possible psychosomatic cause to mean that even if it was psychosomatic, patients should be treated better than this. Which is right.

Yes, I almost made a post to highlight the stark contrast between current MRC projects and completed ones. Time will tell if this is good work but at least they are not funding more work like PACE and SMILE. Anyway, my comment was about him wanting to advise Carol Monaghan on the science of ME...

With friends like these...

It is not enough say more needs to be done. The right thing also needs to be done. And for that there must the acknowledgment that what is currently being done is wrong.

The Minister seemed to miss the point. Much of the little that is done to "help" patients is dysfunctional or harmful. There needs to be some recognition that the current approach has utterly failed. Small incremental improvements are unlikely to have any meaningful impact. There is little...

A speaker saying that eminent scientists are questioning the PACE trial.

This link works for me https://parliamentlive.tv/Event/Index/3d63c39d-18f3-4cd7-8509-c91785dced98

Yesterday I read that one of the prisoners admitted that he had faked an emotional breakdown (or a similar event, I don't remember the details).

The destruction of PACE is an extremely positive step in my view.