Search results

https://www.indiaabroad.com/health/mysterious-chronic-fatigue-syndrome-shuts-down-young-adults-lives/article_693fcce2-190e-11e8-a7b3-7f1e6e75dcc8.html Overall a good article that quotes many of the usual suspects: Montoya, Dimmock, Davis. Overall, the article is very California-centric, and...

Begum's Wikipedia page has info from a Sky News article: The orginal quote was:

The face of M.E. (managed with a strict diet and training regime). :unsure: Edit: Replaced with better youtube video of the match.

From the 2006 Jason et al. paper cited by the IOM report: Whatever "CFS-like illness" means (seems to mean they either don't meet Fukuda or they didn't have a medical examination, but unclear), that's apparently where the high end 2.5 million number comes from.

Superwoman overcoming ME (at least that's the narrative of the story) back in the news again. I wonder what her "strict diet and training regime" consists of? http://www.bbc.com/sport/boxing/43431693

My request for access to a ME/CFS specialist will soon be heard by a Kaiser Permanente committee. If denied, there will be an appeal process. I don't want to jeopardize the process in any way, so no details at this time, particularly in a public forum. If anyone has questions, message me...

I've been unsuccessfully trying to get my HMO to recognize the need for an ME/CFS specialist, just as they have many MS specialists. Based on prevalence figures, my HMO should have over 50,000 ME/CFS patients. No specialist. I will show them this article/study. Perhaps it will make a...

I don't mind post-exertional relapse. Malaise sounds a lot like fatigue. The Bateman Horne Center uses both terms on their home page.

Got a call back from Kaiser Member Services today. Unlike the last person I spoke with, this representative only wanted to hear about my medical needs. Not the systemic issue of lack of ME/CFS patient care. So, now I'm working on the much narrower goal of getting an outside specialist...

No response yet from either the California Medical Board or Kaiser Permenente. I'm in waiting mode. If you are one of Kaiser Permanente's 13 million members, I would encourage you to call Kaiser Member Services (my experience was it's best to phone them). Let Member Services know: As an ME/CFS...

I filled out the online questionnaire two weeks ago and got an automated confirmation. If I get a response, I'll post in this thread. To be honest, I almost didn't sign up. When I had neurocognitive testing a year ago, I crashed so hard afterwards, it took me weeks to recover. The thought of...

At the risk of sounding cold and heartless, some "frequent flyers" are drug addicts or alcoholics who go on a binge, then take an ambulance to "dry out" in the hospital. When they're recovered and sober, they leave the hospital to binge again and repeat the process. How to break this tragic...

These so-called "wet houses" are working for some communities, but they are often a tough sell politically. No one wants a wet house in their neighborhood. Plus in expensive cities, the idea that chronic alcoholics should be given free housing where the working class can't afford to live can be...

Today, I was bored and "unrested". :innocent: I decided to try a different strategy with Kaiser Permanente, to see if it got better results. Rather than trying to get them NOT to do something (stop GET), why not try to get them TO DO something instead? My thinking: If Kaiser Permanente simply...

Another event that might have been worthy of inclusion was the CDC removing GET and CBT from their treatment recommendations.

Stanford wants me back for another blood draw later this month. So apparently things are moving forward with a new study. That's all I know right now.

I truly hope you find something that helps, @TigerLilea. All I can say is I tried a lot of sinus products. 90% of them did nothing or made things worse. Most of the rest only helped short term. Just the probiotic seems to be helping long term. But it's only been 3 months. Edit: I've had...

I've had good experience over the past 3 months with a nasal probiotic called Apothex Nasobiotex L. Sakei Powder. It's cleared up about 60% of my chronic sinusitis. This product only ships in the United States, but perhaps there is a similar product where you are? Antibiotics and sprays only...