Search results

  1. Hoopoe

    SEID/CFS is common in sleep centre patients with hypersomnolence: A retrospective pilot study, 2018, Trotti et al

    Here's the opening paragraph of the PEM section in the IOM report https://www.nap.edu/read/19012/chapter/6#78 The authors don't seem to have read this part, as it clearly says that "PEM is more than fatigue following a stressor".
  2. Hoopoe

    Ideas For Marketing ME More Effectively...

    (but we will if you don't start funding research soon)
  3. Hoopoe

    Ideas For Marketing ME More Effectively...

    When a lack of energy makes activities of daily living unsustainable. Followed by a list of activities that are affected.
  4. Hoopoe

    Sweden stands up for open access – cancels agreement with Elsevier

    Open access means that the public who paid for all this would no longer have to also pay the publisher to access scientific papers.
  5. Hoopoe

    Sweden stands up for open access – cancels agreement with Elsevier

    For those who have not been following this topic, the way Elsevier earns money is basically by having researchers do work paid for by taxpayers and doing unpaid peer review, then selling access to the published papers back to researchers.
  6. Hoopoe

    SEID/CFS is common in sleep centre patients with hypersomnolence: A retrospective pilot study, 2018, Trotti et al

    Full text here https://sci-hub.hk/https://doi.org/10.1111/jsr.12689 I was skeptical about this claim and suspected that they had used a flawed definition of PEM. I therefore looked at the methodology. Here is what I found: They retrospectively attempted to determine whether patients met IOM...
  7. Hoopoe

    Psychiatry Advisor: Addressing Depression in ME/CFS

    I am often in good mood in the morning, despite also experiencing symptoms.
  8. Hoopoe

    Ideas For Marketing ME More Effectively...

    It's not representative of the majority of patients. About 25% of patients are severe and bedbound but of those only some are so severely ill that living death becomes an accurate description.
  9. Hoopoe

    HPV study gets retracted, no outright fraud or major error

    Interesting that people who claim to have suffered damage from the HPV vaccine are apparently labelled as suffering from psychogenic symptoms. This just fuels distrust towards the medical establishment.
  10. Hoopoe

    Esther Crawley's contribution to #MEawarenessweek

    That she's heading a clinic that sells this treatment has of course nothing to do with her motivation to help children.
  11. Hoopoe

    Effects of unsupportive social interactions, stigma, and symptoms on patients with myalgic encephalomyelitis and cfs, McManimen et al, 2018

    The stigma and disbelief is in part fueled by the all in the mind narrative promoted by Wessely et al. They would disagree they are sending out this message but it's hard to interpret their statement about illness beliefs perpetuating the illness any differently. Some relevant statements by...
  12. Hoopoe

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    Subtext? The message is right there in figure 1: cognitive symptoms are the result of patients paying too much attention to functional symptoms. A lot of this functional/psychosomatic nonsense seems to be born out of an emotional need to silence patients complaining about symptoms that cannot...
  13. Hoopoe

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    The exorcists were baffled that nobody wanted them to do their best trying to rid patients of their demonic possession. They agreed it must be due to stigma against demonic possession.
  14. Hoopoe

    Forskning.no (Norway) - ME-sick psychologist: I'm not the type to get ME, I thought

    It's worth looking at what these mental explanations actually say: they are the accusation of laziness and hysteria in disguise and a form of illness denial (referring to the idea that the illness is perpetuated by deconditioning and beliefs). They are insulting for their content, not because...
  15. Hoopoe

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    What does it mean that anonymous experts are quoted in defense of GET?
  16. Hoopoe

    David Tuller Trial By Error: My Visits with Alem Matthees

    Poor Alem. That's horrible. It's upsetting to know that there must be a significant number of patients who are so severely ill they have even difficulties communicating with the world.
  17. Hoopoe

    1st ME/CFS Canadian Collaborative Conference

    I also found this interesting Are we dealing with multiple illnesses that share the same metabolic response? @alex3619 That is a genetically defined metabolic survival strategy.
Back
Top Bottom