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Having spent a lot of time in online patient communities, I have seen this phenomenon repeatedly. Patients tend to think that in some other country, there is better medical care for their problem.

The revolution spreads.

What a frustrating poll. No could mean "not doing enough", or "doing the wrong thing". When I checked it was 40% yes and 60% no. Edit: one can see how users from different countries voted. The UK voted 95% no. :eek:

Excellent. A step in the right direction has been taken. I'm still cautious because words are cheap and the psychosomatic ideology has historically not been challenged enough. As we know, they have a tendency to prematurely draw conclusions that the illness is caused by psychosocial factors. A...

Non-operative treatment of appendicitis seems to mean amoxicillin and clavulanic acid. https://www.ncbi.nlm.nih.gov/pubmed/24646528 Maybe Crawley has finally decided to do useful work, after hitting her lowest point helping Phil Parker promote the lightning process?

This is good news, right? I don't know who this Sir Cable is, but maybe he can challenge a certain other knight to a duel debate. @Jonathan Edwards could he be our Mueller? ie. the person that has the power to uncover all the corruption and finally hold the people responsible for this mess...

Perhaps the illness and patients are seen as unworthy. If that sentiment is pervasive in the circle of people involved in all this, disrespectful behaviour and rule violations could be the normal. As normal as having coffee for breakfeast.

@Gary Burgess are you familiar with the PACE trial? It demonstrates why there has been no progress in 30 years. Some psychiatrists insist they understand CFS and know how to treat it but they are just charlatans who publish fraudulent research, and they have been skillfully controlling the...

More evidence that this is a hypometabolic syndrome? Is this reliable work?

I think this may be old news, unless there has been an update. The update tab shows nothing however.

Patients are rightfully upset that a few researchers that are fooling themselves with unblinded studies have derailed efforts to find answers. Unblinded studies might be the norm in the field of psychological medicine but as patient I feel no obligation to pretend that these wouldn't lead to...

I think this is a disease that can linger in the background until some triggering event shifts the balance from health to sickness. The initial trigger would simply be some event that has shifted the balance point from above the healthy line into the sickness line. And these events can continue...

He is trying to convince MPs that it's all a misunderstanding. This could work because MPs may not have scientific training or time to carefully examine all claims. The PACE authors are very good at creating the superficial appearance that everything is in order.

If you're not high 100% of the time, you're abnormal and need antidepressants. Also, if you have any unexplained physical symptoms such as GI issues or remarkably poor stamina then you're probably also depressed, because depression works in mysterious ways. Signed, the pharma industry. Edit...

I think it's time to coin the term alternative science. PACE is alternative science. A mess of self-confirmatory nonsense, done by people that don't know enough about real science to recognize their own incompetence.

No it doesn't, because there is no data showing that the observed results are specific to "functional somatic syndromes".Where is the comparison to similar chronic disabling illnesses such as heart disease or multiple sclerosis? Even if it were a specific finding, it would still be unclear what...

A creepy, manipulative cult, led by people who are more than a little crazy. The manipulation starts when they say that people are in denial about the link between emotional troubles and physical symptoms.

It's more about the right people. I don't mind brain imaging studies, but expect the worst spin and shoddy methodology from PACE trial authors & friends.

It was encouraging but I got the impression that little progress was made. I don't think it was made clear that the "national strategy on CFS" as one could call it, has been a total failure and is being propped up by fraudulent or incompetent research (the most notable example being the PACE...