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I'm worried about a chinese whispers effect where the original message is distorted: "Restrained or mistreated mice show alterations in mitochondrial function" becomes "psychological stress affects mitochondrial function", which becomes "abnormal mitochondrial function is also psychological"...

https://news.ycombinator.com/

I can already see how studies where animals are restrained will be used to "explain" mitochondrial abnormalities in humans. I'm also not sure about categorizing chronic restraint as psychological stress.

Soon MUS patients will have to wear a special badge that identifies them as such, to make sure they don't accidentally get medical care.

Ellen Goudsmit seems to misunderstand a few things. She says "malaise is not the key characteristic of the illness" and that "an association between symptoms and minimal exertion is". Nobody is disagreeing with any of that! The term PEM does not refer to malaise only and we are not pushing for...

There actually are patients who find the whole MUS culture wonderful and want to learn how to cure illness with mental acrobatics. The tragedy of illness can induce irrationality.

How is the situation in Austria?

How long until the computerized Lightning Process?

It's this one apparently https://psychology-tools.com/zung-depression-scale/ This scale is interesting because there is no option to indicate that a symptom is not present. A symptom is always present "a little of the time" or more, never absent. If I select "a little of the time" for all...

Next steps: blood test, major findings, a surge of interest in the illness?

Did you submit this before the deadline? If not, is everything OK?

I agree that this additional donation happened because patients were so grateful on various social media. And also because we really need some extra help.

Deeply disturbing. If you want to solve a problem, you need to acknowledge that it exists, talk about it, understand it.

The authors take the position that CFS doesn't really exist in Germany because it's not being diagnosed, and then go on engaging in extreme stigmatization of patients. No wonder it's not diagnosed with these attitudes!

This document is even worse than the worst rubbish coming out of the UK.

Even if CBT makes patients worry less about their chest pain or whatever the problem is, does this mean that a mental illness is being treated successfully? No, because it hasn't been established that the pain is due to a mental illness. It's merely assumed that it is (a kind of god of the gaps...

Out of curiosity, I looked up one study (Kroenke 2007). It's titled Efficacy of treatment for somatoform disorders: a review of randomized controlled trials. https://www.ncbi.nlm.nih.gov/pubmed/18040099 Which tells us the authors view unexplained physical symptoms as indicative of a mental...

@Nasim Marie Jafry thank you for attending the event. It's so important that patients speak for themselves.

It's sad that the UK establishment is still, for the most part, pretending that there are no issues with PACE. I think that's because this isn't just about PACE but also about other commonly held views concerning various "medically unexplained symptoms" and mental illnesses. The methodology in...

Thanks to the signatories.