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  1. Hoopoe

    Factors impacting the illness trajectory of post-infectious fatigue syndrome: a qualitative study of adults' experiences (2017) Jason et al

    Wow this paper is pretty good. Joke: clearly they haven't had the chance to be cured in 48 hours by a LP therapist :D.
  2. Hoopoe

    Empty Sella Syndrome

    I would be cautious trying to read much into ESS. It's commonly found in patients that don't have any major health problems, so it's not suitable as diagnostic marker. You have to measure the function of hypothalamus and pituitary with specific stress tests to find out whether there is a problem.
  3. Hoopoe

    Key Concepts for Informed Health Choices: a framework for helping people learn how to assess treatment claims and make informed choices.

    Mimicry is a survival strategy employed by many animals. It seems that humans may employ what could be called virtue mimicry (giving the impression of embracing certain virtues, when in reality doing no such thing). Or maybe I'm just overthinking this and reinventing hypocrisy... but a case...
  4. Hoopoe

    Blog: Spoonseeker, "An Offer You Can’t Refuse"

    English speakers, please help me out here: what is the word for disrespecting patient autonomy? (when a no is not respected, and patients are pushed or even forced to do things they clearly did not want to do).
  5. Hoopoe

    Blog: Spoonseeker, "An Offer You Can’t Refuse"

    One gets the impression the people running the asylum are crazier than the inmates in some ways.
  6. Hoopoe

    The tricks propagandists use to beat science

    I find that manufacturing doubt, controversy and confusion is a good description of what the BPS crowd have done and continue to do. The result is precisely that health authorities don't know what to do because there is no consensus. Insight into who exactly has given them money over the years...
  7. Hoopoe

    Empty Sella Syndrome

    I have this.
  8. Hoopoe

    The Scientism of Psychiatry

    Not sure if pseudoskeptics is a good term. Maybe a better term is people who would like to be a skeptic but lack some of the required qualities. Anyone can be skeptical, and good skepticism is valuable, but many so called skeptics don't impress me much (neither am I a good skeptic myself...
  9. Hoopoe

    New cryptocurrency offer aims to 'revolutionise' charity sector - OHC founder

    I recommend not investing in this. There is an overabundance of cryptocurrencies and most of them have no reason to exist. They just exist to take advantage of the hype and enthusiasm. Initial coin offerings seem to be mostly a get rich quick scheme for the persons running them. Unless this...
  10. Hoopoe

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    I also saw myself in that description. These psychogenic models always make a lot of assumptions and don't consider plausible alternative explanations. I would love to see the best evidence for the existence of emotionally induced pain. I doubt that core ideas like these have any real...
  11. Hoopoe

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Fatigue is part of the behavioural control system in the brain. It's a signal to limit activity and increase rest. Many other factors, such as motivation can counteract the behavioural effects of fatigue (if you're highly motivated, you'll persist in a fatiguing activity for longer). Studies...
  12. Hoopoe

    Biopsychosocial seminar in Norway (June 2018)

    They claim to have answers, but where's the evidence? There is none. It's just a cultish belief system that would be forgotten if there wasn't money to be made from it. They want to sell or even force quack treatment on some of the most vulnerable patients in the healthcare system.
  13. Hoopoe

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Something like this just invites biased self reporting, doesn't it? I remember reading that CBT made MS patients less fatigued than healthy people according to this scale in one study. More likely, this was just an artefact of biased self reporting.
  14. Hoopoe

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    As child, when I first reported that something was wrong to my parents, immediate disbelief was the reaction. Disbelief for no good reason is probably a recurring theme.
  15. Hoopoe

    Wiped out by carbohydrates

    What happens in the body when a carb heavy meals wipes out my energy for a few hours, forcing me into bed? It's interesting that smaller amounts are energizing, but a large amount can have, with some delay, the opposite effect. How many people here have this?
  16. Hoopoe

    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    Ian Lipkin also said it would take about 5 years to crack the illness. It would take a couple of years to test existing drugs. The NAM report says: $9.1 billion losses per year. Let's assume that some research advance could reduce that by only 10%, or $910 million per year. Now let's say that...
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