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Nothing wrong with relaxation, but can we get some real treatments please?

Autopsy studies. With all tissues accessible, and sufficient money and effort, it should be possible to figure out what is going wrong and where in a sufficiently large number of patients. Combined metabolism and CPET studies should enable development of a biomarker for PEM. Since we all need...

The IOM report is good for this purpose.

If his job depends on dismissing patients, then this is a bit like trying to convince Coca Cola that sugar drinks are unhealthy. It's other people that can be convinced.

Proponents of somatoform disorders are making progress impossible for themselves if they are unwilling to accept the honest patient feedback that the therapy is misguided and useless.

Sounds like they are worried that central sensitization is acquiring a bad reputation because it's applied to psychosomatic conditions.

In short, omnibabble.

I might actually be stuck in a fight-or-flight response due to all the BS of this kind. I think they are confusing disease activity that involves increased sympathetic nervous system tone with a stuck fight-or-flight response. A fight-or-flight response is just one of multiple reasons for...

Postexertional relapse syndrome. PRS.

The same group that opposes IOM criteria and SEID as name also doesn't like the term PEM because malaise is too vague. They prefer postexertional neuroimmune exhaustion. Which to me sounds more like neuroimmune babble than a more specific name.

An update was published on June 13 with new information on the trial design. This is a pilot study and will not have a control group by the looks of it. The CPET data should still be interesting. https://cortene.wordpress.com/2018/06/ It is possible to leave comments on their blog.

In the real world, in most countries at least, there is probably a huge problem with patients that are somewhere on the ME/CFS spectrum not being diagnosed. That means the full extent of the problem is obscured. It also denies these patients the chance to contribute to research and advocacy.

I did look into some of the other studies he's citing and they don't really support his claims. I can grant him that meditation can lower blood pressure, but it's questionable whether that is best understood as conscious control of physiology. It's certainly not evidence that people can learn...

I understand the lightning process and Parker better after reading this. He is more interested in getting high on grandiose thoughts and selling inspiration, than understanding and solving problems in real world.

The test reveals how much effort the patient put in.

As far as I know there is a long history of claims that psychological factors can meaningfully affect disease processes but it always turns out to be nonsense. If LP can cure people in three days, it would be easy to prove that it works in ME/CFS by first demonstrating presence of PEM in...

Not much, without knowing any details. It's possible that they would be well and working even without LP.

This may be entirely off topic, but why do I feel pressure in head and a headache when standing up, while also having that feeling malaise and weakness that comes with low blood pressure? It is possible to have low and high blood pressure simultaneously?

He's making some wild claims: - That LP training allows people to "develop an awareness of which neurological pathways they are activating" and whether they are healthy or unhealthy. - That "cognitive, linguistic, embodied cognition and gentle movement techniques" can be used to interrupt those...

The labelling of patients as militant is just part of a pattern of negative stereotyping of patients.