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  1. Hoopoe

    Member comments wanted: Third section (What the guideline will cover) of the NICE ME/CFS guidelines draft scope

    Agreed, but merely asking for "objective" outcomes could still leave the door wide open for misleading claims. We need to clearly define what constitutes reliable outcomes and demand that current and future evidence be held to this standard. Any loopholes will be exploited. While we are at it...
  2. Hoopoe

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    Designing a reliable clinical trial of CBT/GET seems difficult without an objective marker of disability, ill health, or disease activity. That is the excuse by CBT/GET proponents. MAGENTA now includes a measurement of activity levels which could be interesting. Measure like the six minute...
  3. Hoopoe

    Resistance To Science and Technology by Julian Vigo (Forbes.com)

    He would never admit to disliking patients because it doesn't fit the image he's trying to cultivate. The solution is to say other people dislike these patients.
  4. Hoopoe

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    Some thoughts on this http://www.bristol.ac.uk/ccah/research/childdevelopmentdisability/chronic-fatigue/magenta-trial/ Ineffective treatments appear effective mainly due to reporting biases and regression to the mean. This study fails to control both of these factors. The design of the GET...
  5. Hoopoe

    Reports from participants in GET and CBT trials

    What the PACE CBT therapist manual says about setbacks https://www.qmul.ac.uk/wolfson/media/wolfson/current-projects/3.cbt-therapist-manual.pdf 1. No acknowledgement that increased activity is probably the most common trigger for aggravation of symptoms. 2. The insistence that setbacks are not...
  6. Hoopoe

    Reports from participants in GET and CBT trials

    CBT/GET proponents seem to view "setbacks" as normal and expected event during therapy. The impression is that adverse reactions are normalized.
  7. Hoopoe

    Reports from participants in GET and CBT trials

    That's when patients are informed that their belief to have been harmed is incorrect. It is assumed that patients are not sick, and that exercise cannot do real harm, so whatever the patient is reporting cannot be correct, and must be a hysterical misinterpretation of ordinary postexercise...
  8. Hoopoe

    BBC News: MP Carol Monaghan leads campaign for new ME treatment

    Right. That is the most likely explanation.
  9. Hoopoe

    BBC News: MP Carol Monaghan leads campaign for new ME treatment

    One day I hope to understand the mystery of what really happens when someone claims they've been cured thanks to LP. Are they full blown delusional thanks to LP? Were they were full blown delusional before, and LP is akin to fighting fire with fire? Are they just letting themselves go to...
  10. Hoopoe

    David Tuller: Trial by Error: My exchange with Professor Bishop

    That said it is very disappointing that Prof. Bishop doesn't seem to have recognized LP as exploitative pseudoscience. Kids being instructed by a guru figure to stand in "magical circles" and telling their illness to stop, at the cost of several hundred pounds. Or perhaps she really has bought...
  11. Hoopoe

    David Tuller: Trial by Error: My exchange with Professor Bishop

    If PACE taught me anything, besides unblinded trials relying on questionnaire being unreliable, it's that science is hard and even the pros make a lot of mistakes. Many of these mistakes are probably due to a lack of time. Having a good understanding of a problem is very time consuming.
  12. Hoopoe

    We need new kinds of antidepressants, in addition to pills

    The highly competitive capitalist society is failing so many. Even medical science might not be a morass of false and exaggerated claims if it weren't so competitive.
  13. Hoopoe

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    I looked around a little and found nothing related to ME/CFS. She appears to be involved in IBS research https://www.contactme-ibs.co.uk/ My guess is that as consequence of interest in IBS she has contact with patients that fit some diagnostic criteria for ME/CFS. He is Ireland's...
  14. Hoopoe

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    I see no butcher though. Someone that would go over the last Wilshire et al PACE paper.
  15. Hoopoe

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    I fear that this one will be all about defending business interests :sick:
  16. Hoopoe

    Waking up in the night and hearing a brain-generated sound

    I think this might be the rather ordinary hypnagogic hallucinations.
  17. Hoopoe

    Application of head scraping combined with five-tone therapy in CFS of liver qi stagnation, Meiling et al, 2018

    Shorter will write an article on Psychology Today on how this shows that real imaginary illnesses are best treated with culture matched elaborate placebos rather than the sterile CBT/GET.
  18. Hoopoe

    Video: The PACE trial: a short explanation, Graham McPhee

    Exactly. The error is deliberate.
  19. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Have you read the paper?
  20. Hoopoe

    Steven Lubet: Trial by Error: Professor Sharpe's intemperate remarks for whom is he speaking?

    That nobody is stopping Sharpe could mean that PACE authors are now in the phase where it is becoming apparent that the defenses will not hold out. That's the phase where they start prioritizing self interest over group interest. Wessely seemed to mainly want to distance himself from PACE. He is...
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