This one stood out in particular:
Sir Edward Davey (Kingston and Surbiton) (LD)
I congratulate the hon. Member for Glasgow North West (Carol Monaghan) on securing the debate and all hon. Members who will participate in it. It is essential that we speak for the millions missing, and it is great...
I took Pound's comment about possible psychosomatic cause to mean that even if it was psychosomatic, patients should be treated better than this. Which is right.
Yes, I almost made a post to highlight the stark contrast between current MRC projects and completed ones. Time will tell if this is good work but at least they are not funding more work like PACE and SMILE.
Anyway, my comment was about him wanting to advise Carol Monaghan on the science of ME...
It is not enough say more needs to be done. The right thing also needs to be done. And for that there must the acknowledgment that what is currently being done is wrong.
The Minister seemed to miss the point. Much of the little that is done to "help" patients is dysfunctional or harmful. There needs to be some recognition that the current approach has utterly failed. Small incremental improvements are unlikely to have any meaningful impact.
There is little...
They switched to another primary outcome measure. Unsure about details. They make it sound relatively harmless, and it could be legitimate, but could also be a way to inflate the efficacy of the CBT group. I'm not going to look into it because it doesn't interest me that much, but maybe someone...
If claims of efficacy were based on self reported health under these circumstances, then over time as therapies are refined and improved, they would be inadvertently optimized for achieving the biggest distortion in self reported health, rather than the biggest improvement in health.
Yes, the...
Sorry to be brutal. This scale is far too complicated. A good scale consists of simple items. Scales are measurement tools, not educational material. People can better learn about severe ME by reading accurate descriptions and real world stories instead of looking at a scale that attempts the...
Rephrasing it:
If a therapy is believed to treat an illness by changing the patient's illness beliefs, then one cannot base claims of efficacy on self reported health, because the therapy could merely be changing the patient's illness beliefs without having an effect on health.
This is very...
We didn't miss it. Various people here have been saying for a while that CBT/GET are designed to alter perception of one's health and thus questionnaire answering behaviour. I don't remember who expressed it first.
Graham did an excellent job expressing it in simpler terms though, and showing...
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