well the one I posted at the other place still comes up on the first page:yawn:
eta: there appear to be a lot more pictures of EC on the net these days
I was just having a look at North Bristol NHS trust info and it wasn't looking too bad but I noticed this:
"Psychologists use a range of approaches and techniques including a specialist form of Cognitive Behavioural Therapy (CBT) developed for people with CFS/ME"
and in the recommended books...
Pa. state Rep. Peter Schweyer speaks on House Resolution 854 designating May 12, 2018, as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day” in Pennsylvania.
Podcast Near FM - interview with Irish ME/CFS Association volunteer (2018)
Debbie Mc Mahon speaks to Gerard Lawlor who is a volunteer with ME/CFS Association & he also suffers from ME. Gerard will talking about the work they do in the association & also about his life living with ME for the...
I'm sorry but you should not have to be told these things by an advocate; as 'the biggest ME charity in the UK' you should know/have known them long ago and acted accordingly. By 'going along' with the whole PACE CBT/GET stance you have only helped to reinforce the psychosocial agenda.
NHS North Bristol
Pain Clinic Team
Clinical Psychologists
Hazel O’Dowd (Head of Department)
https://www.nbt.nhs.uk/our-services/a-z-services/pain-clinic-services/pain-clinic-team
eta: see also AfMEs webinars for GPs
see also MEA symptoms, testing and assessment:
http://www.meassociation.org.uk/about/the-symptoms-and-diagnosis-of-mecfs/
and the IOM stuff:
Family Doctor: ME/CFS What Every Family Physician Needs to Know...
This came up on the Mikes EU marathons thread.
"
DENMARK
I spoke to Rebecca Hansen from the Danish ME Association ME Foreningen and severe ME patient Kamilla Thomsen. Here's what they told me about living with ME in Denmark.
Rebecca Hansen
Can you give us an overview of what life is like...
"
Finally, it is important to note that public concern
about error of this kind is heating up with respect to myalgic
encephalomyelitis/chronic fatigue syndrome (ME/
CFS).
In the last few years, the U.S. Academy of Medicine
(Institute of Medicine 2015), National Institutes of Health
(Green et...
so there weren't actually any people diagnosed with CFS in the group(?)
I think gentle exercise is supposed to help some people with fibro only(?)
Although the fact that this therapy is normally used for CFS patients is alarming.
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