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  1. Sly Saint

    Norwegian health authorities classify Lightning Process as alternative treatment

    well the one I posted at the other place still comes up on the first page:yawn: eta: there appear to be a lot more pictures of EC on the net these days
  2. Sly Saint

    AFME provide new self advocacy support material

    I was just having a look at North Bristol NHS trust info and it wasn't looking too bad but I noticed this: "Psychologists use a range of approaches and techniques including a specialist form of Cognitive Behavioural Therapy (CBT) developed for people with CFS/ME" and in the recommended books...
  3. Sly Saint

    Wessley

    on this thread https://www.s4me.info/threads/wesselys-mental-health-review-could-also-replace-mental-capacity-act.3084/page-3
  4. Sly Saint

    Why Bioethics Should Be Concerned With Medically Unexplained Symptoms. (2018) O'Leary

    I must confess that I read the article without really twigging who had written it. confused :confused:
  5. Sly Saint

    Rep. Schweyer Pennsylvania - ME/CFS Awareness day recognised

    Pa. state Rep. Peter Schweyer speaks on House Resolution 854 designating May 12, 2018, as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day” in Pennsylvania.
  6. Sly Saint

    Podcasts - ME/CFS Ireland

    @Tom Kindlon
  7. Sly Saint

    Podcasts - ME/CFS Ireland

    Podcast Near FM - interview with Irish ME/CFS Association volunteer (2018) Debbie Mc Mahon speaks to Gerard Lawlor who is a volunteer with ME/CFS Association & he also suffers from ME. Gerard will talking about the work they do in the association & also about his life living with ME for the...
  8. Sly Saint

    World ME Alliance, was previously IAFME: International Alliance for ME

    I'm sorry but you should not have to be told these things by an advocate; as 'the biggest ME charity in the UK' you should know/have known them long ago and acted accordingly. By 'going along' with the whole PACE CBT/GET stance you have only helped to reinforce the psychosocial agenda.
  9. Sly Saint

    Norwegian health authorities classify Lightning Process as alternative treatment

    'I did it for the children' (?) wearing a white tea towel with a blue band a la mother theresa?
  10. Sly Saint

    Norwegian health authorities classify Lightning Process as alternative treatment

    I'm not on FB or Twitter but is there a way to link to this twitter thread? eta: or this one:
  11. Sly Saint

    AFME provide new self advocacy support material

    NHS North Bristol Pain Clinic Team Clinical Psychologists Hazel O’Dowd (Head of Department) https://www.nbt.nhs.uk/our-services/a-z-services/pain-clinic-services/pain-clinic-team eta: see also AfMEs webinars for GPs
  12. Sly Saint

    AFME provide new self advocacy support material

    no it's not just you :thumbsup: , it's standard AfME 'style':muted:
  13. Sly Saint

    AFME provide new self advocacy support material

    see also MEA symptoms, testing and assessment: http://www.meassociation.org.uk/about/the-symptoms-and-diagnosis-of-mecfs/ and the IOM stuff: Family Doctor: ME/CFS What Every Family Physician Needs to Know...
  14. Sly Saint

    Living with ME in Denmark - interviews with Rebecca Hansen and Kamilla Thomsen

    This came up on the Mikes EU marathons thread. " DENMARK I spoke to Rebecca Hansen from the Danish ME Association ME Foreningen and severe ME patient Kamilla Thomsen. Here's what they told me about living with ME in Denmark. Rebecca Hansen Can you give us an overview of what life is like...
  15. Sly Saint

    Why Bioethics Should Be Concerned With Medically Unexplained Symptoms. (2018) O'Leary

    " Finally, it is important to note that public concern about error of this kind is heating up with respect to myalgic encephalomyelitis/chronic fatigue syndrome (ME/ CFS). In the last few years, the U.S. Academy of Medicine (Institute of Medicine 2015), National Institutes of Health (Green et...
  16. Sly Saint

    A graded exercise therapy circuit class for rheumatology pain patients (Warning - may raise blood pressure!)

    so there weren't actually any people diagnosed with CFS in the group(?) I think gentle exercise is supposed to help some people with fibro only(?) Although the fact that this therapy is normally used for CFS patients is alarming.
  17. Sly Saint

    Simon Wessely Research & Related Quotes

    "I found that one searching for 'mad professor'" Now, how to get this one to come up when doing a similar search........
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