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and yet .......

"By Charlie Moore For Daily Mail Australia Published: 06:46, 30 April 2018 | Updated: 08:23, 30 April 2018 Burning skin, forgetting how to speak and chronic exhaustion: Push for national inquiry into mystery disease - that could be hiding in your home A leading doctor is calling for a...

I wonder what this guy would make of PACE: https://en.wikipedia.org/wiki/John_Bohannon " Who's Afraid of Peer Review? Main article: Who's Afraid of Peer Review? In September 2013, he submitted a fake scientific article to a large number of fee-charging open-access publishers,[18] revealing that...

but I don't think that is what the nanoneedle test is testing (as far as I remember even Prof Davis doesn't know why the test works; something to do with impedance). eta: this is the test he does by stressing the cells out with salt(?)

I'm not trying to say ME and MS are the same, just that the information on MS on the one hand shows similarity with several symptoms (I didn't know they got the fluey feeling too) and yet the way they are presented (to the wider public) are perceived/received very differently. From another MS...

He has only done the nanoneedle test on 10 patients (?) I wonder if he might consider trying it out on a couple of Nancy Klimas GWI patients. If it proved negative then that would go towards showing it is a good test for ME, and if positive then maybe some of the GWI funding might help to...

Interesting how MS patients talk about fatigue: "Fatigue - an overwhelming tiredness - is one of the most common symptoms of MS. Fatigue in MS is not just an ordinary tiredness, like you might get at the end of a hard day's work. It's as an overwhelming sense of tiredness that often occurs...

I think they wanted MS there too but darn it someone developed the CT scan.

try telling that to AfME.......

this thread may be of interest: https://www.s4me.info/threads/government-and-insurance-companies-establishing-the-bps-model.2319/

Regardless of sum, it is the only time (according to an FOI) that the DWP have ever contributed to a research trial, apparently because of the return to work content (which I don't think materialised).

"Experts Gather in Montreal to Develop International Research Agenda on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome MONTREAL, April 25, 2018 /CNW Telbec/ - International experts will participate in the first-ever Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Canadian...

New Zealand ME/Chronic Fatigue Syndrome Documentary in Waterloo May 1 @ 7:00 pm The Waterloo Wellington Myalgic Encephalomyelitis Association (WWMEA) is pleased to present UNREST (for free) on Tue. May 1, 2018, 7:00 PM at the Princess Twin Cinemas, 46 King Street North, Waterloo, ON N2J 2W8...

Free Screenings of Unrest, Sundance Film Festival award-winning Documentary about ME/Chronic Fatigue Syndrome in Dublin, Galway, Limerick & Sligo on May 12th, International ME/CFS Awareness Day The Irish ME/CFS Association is pleased to announce that it has arranged four free screenings of the...

Over on a thread about a review of probiotics research papers I came across the 'Jadad scale'. "The Jadad scale was used to asseverate the quality of the clinical trials considered". Not heard of it before so had a look on wikipedia: " Description The Jadad scale independently assesses the...

Thanks Suzy. I don't know if you have already posted it (apologies if you have) but I think this Q and A document you and MD put together is very good. https://dxrevisionwatch.files.wordpress.com/2017/04/icd-11-proposal-g93-3-q-and-a-april-2017-version-1-1.pdf This is of particular concern (as...

Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review. Roman P1,2, Carrillo-Trabalón F3, Sánchez-Labraca N1, Cañadas F4, Estévez AF4, Cardona D1. https://www.ncbi.nlm.nih.gov/pubmed/29695180