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In Chicago Evening Post: "TORONTO, ON, CANADA – 06-05-2018 (Press Release Jet) — Like many people, Faith always assumed if she fell ill she would be covered by her group benefits insurance company if there ever came a time when she wasn’t able to work. Unfortunately for this 40 year old from...

Public Awareness of ME/CFS : A Changing Story "We saw small but significant progress when Utah’s Governor, Gary Herbert released an official declaration that acknowledges the ME/CFS community as legitimate, and “recognizes the struggles faced by those afflicted with this disorder, respects...

https://www.s4me.info/threads/meghan-markle-a-new-me-ally.3154/#post-57522

https://www.s4me.info/posts/68866/

I would send them this link: http://voicesfromtheshadowsfilm.co.uk/ "“Voices from the Shadows” shows the brave and sometimes heartrending stories of five ME patients and their carers, along with input from Dr Nigel Speight, Prof Leonard Jason and Prof Malcolm Hooper. It was filmed and edited...

Just having a quick look at this one and it's not been aligned correctly meaning bits (whole of rhs) are missing. You can guess what is written but not always.

Just looking thro AfMEs Scottish Hub literature: " Action for M.E. has co-funded the UK’s first biobank for ME-CFS, an essential piece of research infrastructure" https://www.actionforme.org.uk/uploads/managing-me-a-guide-for-gps-in-scotland.pdf no mention of the organisations actually listed...

have amended my post.........but it is definitely scheduled.

With the scheduling of the debate in Westminster hall in June and the ongoing NICE guidelines review I wondered if there was any way to mount a campaign to get this 30min version of 'Voices from the Shadows' (which clearly illustrates what has being going on in the UK particularly with regards...

Should have pointed out that Amy Mooney is the mother of Lizzie Mooney: http://www.asbmb.org/asbmbtoday/201803/Feature/ME/ on that site found this: An eight-decade mystery Key moments in myalgic encephalomyelitis history have listened to both podcasts; highly unlikely but not sure if they...

I posted this quote on another thread but think it appropriate here also: " Martin J Walker, who has written about other illnesses such as Gulf War Syndrome, which he also claims have been inappropriately psychiatrised, describes this process: 'You get ill, you are accused of being mentally...

I'm not 100% sure, but I think that MPs are allowed to 'name names' under Parliamentary privilege, without fear/risk of being sued for libel .............. it's about time that they did rather than anonymising everything (eg those involved with PACE and what lead up to it). It's only when...

In relation to this (NICE guidelines) and the UK SNOMED/WHO (?) where CFS/ME is split into mild, moderate and severe how exactly is this determined?

"Amy Mooney, MS, OTR/L, is an occupational therapist who knows first-hand about the role of caregiving and about Myalgic Encephalomyelitis, or "ME," as the mother of a child with this condition. ME is also referred to as Chronic Fatigue Syndrome (CFS), Myalgic Encephalopathy, Post-Viral Fatigue...

From 2015 but to be presented in a talk in July at the Society for Academic Primary Care conference: https://sapc.ac.uk/conference/2018 https://sapc.ac.uk/conference/2018/abstract/actib-trial-assessing-cognitive-behavioural-therapy-irritable-bowel one of the co-authors is Susan Windgassen...

retweeted by Simon Wessely: again........as with Sharpe quoting Feynman.... " The scandal of poor medical research D G Altman We need less research, better research, and research done for the right reasons What should we think about a doctor who uses the wrong treatment, either wilfully or...

I see from the comments that @JohnTheJack has already 'got in there'. One of the other comments cites a paper written on the psychiatric framing of ME/CFS (see link below) which I started to read, and found this nice quote: " Martin J Walker, who has written about other illnesses such as Gulf...

How ‘Drop the Disorder!’ colludes with the neoliberalism it claims to oppose The unreported 2015 meeting between the CPN, Peter Kinderman, and Dr Simon Wessely full blog here: https://drnmblog.wordpress.com/2018/05/23/how-drop-the-disorder-colludes-with-the-neoliberalism-it-claims-to-oppose/...

Just got this email: " Thanks to your generous support of our Indiegogo campaign, #MEAction is adding a new team member! We’re thrilled to welcome Jaime Seltzer as our Director of Scientific and Medical Outreach. She will work with ME clinicians and researchers in order to facilitate engagement...

6448.... crawling along (bit like me at the moment)