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@adambeyoncelowe It's always good (if a bit nauseating) to know what this crowd is up to. Although I'm at the point where it's not enough to keep track of Edwards et al I'd like to point out, if you go to the bottom of the page you'll see that their funding came from Wellcome Trust, the MRC...

When I here about or read this kind of thing I'm never quite sure which direction I want to go after first. On the one hand it seems like one of those situations where the person is a hammer and every person that comes through their life is a nail or at least a potential nail. It's not a bad...

It presents as quite infantile. Who does she think she's talking to -- 3 year olds. Embarrassing.

Sounds good until you go back and remember earlier days when the 'balance' across BBC reporting was all BPS all the time and people speaking up against the PACE trial were militants/nasty people/crazy etc

I'm not so enthusiastic. At this point in time we've come a long way. Elsewhere in the media things have changed quite a bit. Having a disingenuous Chalder quote to me signals a cover up for the BPS crowd. They're going to use the Guardian to remake history for themselves. And again, I know...

Done. I'm curious though. I had thought there were a few suspect people (central sensitisation theorists) who were to present their ideas. Haven't heard anything but reports of real science so far. Which is very good. I am relieved.

I look forward to having these various findings explained in more detail.

I do hope he sees justice and is vindicated.

Looks like there are lots of interesting findings being shared.

Or that everything the person says is not to be believed. They are reduced to knowing nothing about themselves and their experience. It's the stuff of nightmares.

@Esther12 I wasn't aware (or didn't remember) that this distinction was made back in 2011. It puts the tweets in a different context then. This makes me wonder then why did they bother with the subset of ME under different criteria? Was it so they could point to that subset responding...

OK for me that begs the question what is cfs? Is it a real disease then? ETA: also, this brings up a problem of terminology for the whole community in that many of us think of our illness in terms of ME and many of the validating studies are being done in the US with the term cfs. So am...

Given that M Sharpe has now come out on twitter and admitted that they were studying chronic fatigue as opposed to ME should not all future research in this area clearly differentiate between the two and flatly state that ME is not being researched (or alternatively clearly state that they are...

Thank-you @Jonathan Edwards for some very clear and thoughtful explaining. I don't know if this will make a difference but I think (not sure) that the paper I linked to is a repeat study to validate another from 2014 here: https://www.ncbi.nlm.nih.gov/pubmed/24572257 It seems to be a small...

I'm hoping that by providing the following link there may be some information there that could be useful to a further discussion of MUS in general. Link is to a PDF file written by Sirous Mobini (2015) Neuropsychology UCL It may provide insight into how the BPS view MUS as their domain...

Thanks @Melanie for your response.

This is related to ME but I didn't see where else this might belong. So it's here: https://www.ncbi.nlm.nih.gov/pubmed/29618472 I would like to have some thoughts on this research if anyone is able. @Jonathan Edwards perhaps? POTS is such a huge co-morbid issue for many of us. Though I...

You might want to encourage more dialogue on the subject of MUS (medically unexplained symptoms) here: https://www.s4me.info/threads/must-fight-mus.2626/

Is ME an environmental illness. I don't know. Can it be triggered by an environmental stimulus -- I think it can. I expect that even multiple triggers might be a factor for some. I don't have an issue with ME under the rubric of EI in Ontario so long as it is seen as physical disease...

Well, there's this as a clue: https://researchportal.bath.ac.uk/en/persons/jo-daniels