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I think thats spot on Mithriel

God help us

With you @Wonko & @Woolie I dont even think it should be called 'suicidal ideation', it's not. It's euthanasia ideation. I have experienced it plenty of times, & it wasnt at all that i didnt want to live, i simply sometimes dont want to live... like this. They dont describe people who are...

It appears that they simply cannott hear any concept that would reveal their ideas to not be backed up by fact. It is inconceivable to them that they are wrong, that they even can be wrong, it's not even possible in their world, so any information that would suggest that they are, simply will...

10yrs or so ago he used to call it 'exercise-induced muscle fatigue' which drove me completely bonkers when i kept reading it in articles & on the MEA website. No you're not. Am i the only one who's sick of saying that i dont feel fatigued, i feel ill. It's a mess, because plenty of people with...

That is absolutely disgusting. In any setting to ask a person that, especially in the context of OH, or indeed in any context other than that where it would be explicitly relevant (eg examining evidence of a vaginal injury in the gynaecologist's office), is absolutely outrageous, and the only...

yes @MeSci in uk it was, due to clot risk. I think to under 30s, but may have been under 40s i cant remember

In the 16 yrs i worked before i developed ME & then during the 18mnths i was "mild" & 'pushing through/in denial about it, i never worked anywhere where they paid sick pay, which was definitely the reason i forced myself to continue. I imagine had i had that privilege i may have rested & not...

this. :laugh: :rofl:

@Binkie4 how awful :( i hope it all improves very soon My bolding. Yes this is also going to be my approach. I cant carry on in total isolation & once i am double dosed, i will be mixing (sensibly) with those who are also doubled dosed and tested. For those who are living/working in front line...

I think one of the issues is that people dont seem to wear them properly, even the N95 masks are worn loosely with big gaps on either side of the nose, so they slip down to the very tip of the nose because the wire isnt pressed tightly, & massive gaping gaps at the sides of the face on most...

I'm looking into Huel. Will let you know how i get on if i try it

Thats good Trish, I only know other non-ME people, but all 4 of them that i know who had AZ & a significant reaction - fever/major flu like - one 40yr old guy said it made him 'feel like shite', at any rate they all had minimum of a couple days in bed with it...they all said their 2nd dose was...

Yes, this, i always find the cross over remarkable too. Sitting reading for too long & my legs stop working properly - coordination goes very wonky.

Is this testable/has it been looked at? One thing i find so remarkable is how when i get a bug - flu/infection etc i feel identical to an ME crash. The crash has more symptoms overlaid on top - eg marked cognitive difficulties, but otherwise in terms of experience they are exactly the same. Pls...

This. I understand what you're trying to do @Andy & this isnt a critisism of it, it's just that personally I always steer well clear of the word 'energy' when talking to people about ME. Because people (when trying to understand another's experience) always try to relate whats being said to...

I'm sure you'll get a more knowledgeable reply, but personally I wouldnt imagine antibiotics would have any impact on the vaccine efficacy, given that antibiotics work on bacteria, no impact on viruses. But i might be completely wrong. I hope someone more more medically knowledgeable will...

Just wanted to reassure you @DokaGirl For 8 days i felt dire, i was over the 'fever/obvious side effects after 5 days but then felt extremely queer - very spacey, weaker than usual, & able to stand for half the usual time feeling extremely sick & dizzy, my temperature even went up a bit again. I...

from the article Since some of the early signs of cancer can easily be dismissed as subjective & the patient gets sent away, because drs with attitudes like his believe them to be 'objectively well' (it's happened to me & countless others i'm sure)..... I dont think he's got any business...

So pleased for you! :) We all make mistakes, I'm so glad it worked out for you both :hug: