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Absolutely. Perhaps she feels her time is better spent pushing forward rather than breaking to write papers/ get published. Not being a researcher i don't know. But actually my quality of life would be hugely improved by not having to be afraid of visiting the GP for fear of being coerced into...

precisely! yes Barry thats what i thought. what seems unclear is whether he is meaning a victim of patients etc, or a victim with them.... either way its spurious

Will it be able to be included in the NICE review?

SH's 'over the shoulder' comment made me feel really uncomfortable, it's a bit creepy & manipulative iyam. It feels like he's either perpetuating the 'harassment from patients' meme, or trying to insinuate himself as if he's been on our side all along & is a partial victim alongside us, when in...

@dave30th you make me so happy every time you speak. I just start smiling at the sound of your voice, and it's the same when I start reading anything you've written. You and your work are an absolute tonic & I am just so so glad you're on our side. I actually get a lump in my throat sometimes...

This is truly excellent. I not managed to read all of it yet but impressed with what i've seen. Many thanks to Vink & Vink-Niese

@Mark Vink you might like to read the very warm reception to this paper on this thread :) https://www.s4me.info/threads/graded-exercise-therapy-for-me-cfs-is-not-effective-and-unsafe-re-analysis-of-a-cochrane-review-2018-health-psychology-vink.6097/

actually no, good point. perhaps the thread would be better deleted but i dont know how to do that.

it'll be lovely wont it. 15 people in a room - 4 with mild ME/CFS, 10 with CF all chatting together & 1 with moderate end of severe ME almost collapsing off their chair with the effort of holding themselves upright & the sensory overload of people talking.... "I find yoga helps me" "you just...

yes i actually didn't notice that. I thought i'd clicked on all the links, but actually It also links to an article about 'attitude' on the rehabilitation link. There is a totally inappropriate & frustrating TATT link too. I obviously didn't check the links very thoroughly the first time around...

Indeed. It all reminds me of an episode of 'Yes Minister'. Somebody will be appointed to a 'quango' soon :rolleyes: :bored: :banghead:

https://www.gq-magazine.co.uk/article/chronic-fatigue-syndrome-everything-you-need-to-know Not too bad i thought. Of course not perfect but I thought it pretty reasonable in comparison to many media articles. At least it's tone is reasonably respectful/sympathetic to the sufferer. Edited to...

:jawdrop::laugh::laugh::laugh::laugh::rofl::rofl::rofl::rofl::rofl: Oh that did make me laugh @Jonathan Edwards, i needed that tonight, thank you:D But HV's tweet itself is comical too, it's absurd - can he not hear himself, he's doing a Sharpe, unwittingly tweeting things about himself/his...

I'm a bit fed up wth the MEA over their social media policy too - not issuing warnings etc (as in my post above) But, while i think they have a blind spot over this particular issue, it's my overall impression that CS works very hard indeed fighting our corner, with the likes of the DWP, NICE...

Sometimes a hot bath makes me feel significantly better, sometimes much worse. It does help with pain while i'm in there, oh god it feels so good! and afterwards for about 30-60mins i do find it all around quite 'reviving' even if it exhausts me. What i mean by that is even if it uses up what...

well i got protagonist.... which reading the description, is completely wrong. I've done this, & slightly different but based on the same idea, tests about 10 times over the last 20yrs, 15yrs ago it was all the rage in the corporate world, & i suppose it still is. I've done the MB test 5 times &...

I can clearly see your post @Andy & we're not fb friends. BUT i had to change the fb settings from 'most relevant' - where fb chooses which comments to display, to 'new comments' - where all comments are displayed in chronological order. I'm in favour of them posting everything. But I find it...

I'm afraid i've not the strength to read the whole thread so apologies if i repeat or go off track. But I couldn't agree more. I think a 'name & shame' website, although possibly useful for some things, would be a massive own goal. The very last thing we need imo is somewhere else for the...

oooo you wouldnt want to do that <sharp intake of breath> ... that'll be boom & bust n you want to avoid that! for anyone unclear that was sarcasm. Interesting article.

Exactly. I couldnt walk 500mtrs in 6 days. It took me a while to understand the chart because of that. My SF36 is 10-15 on a good day, & my maximum distance, at al,l (never mind in 6mins) is 46mtrs without collapsing. This is up & down the garden. And despite making the trip as often as...