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Sorry cross posted with @strategist - removed the following from an edit to original post - it didnt seem fair to add such a significant edit when several people had already liked original post. I don't see why the clinics cant be maintained by ditching the GET/CBT delivery but keeping...

My thanks to all who participated in the meeting. I think this is precisely what will happen Indeed. I dont know why more people cant see that the position of "well such n such supplement/off label drug helps some people, so lets have it".... is simply the BPS argument in the opposite...

yeah i thought so thanks I just wanted to check.

Sounds like the usual 'alternative health' malarky to me but I dont know... Does anyone else know anything about this? https://www.sciencedaily.com/releases/2018/04/180425093745.htm

this is what irritates me sometimes, I dont really understand such catastrophising, i mean i understand it & am not judging anyone who feels that way, i guess it might be natural to feel like that.... what i mean is that i never thought or think like that, it's just not where my thoughts go, &...

One of the things i find problematic is the assumption that pwME are 'not used to it', so desensitisation could work. But what about the experience of people whose problems with sound & light are the reverse of this theory... ie that when they're well rested AND anxious they can tolerate a...

I think #JusticeForME is excellent, perfect. we should have that as a hashtag for something even if it's not this.

oh i seeeee, i thought it was too good to be true, am so goofy tonight!

#GoFundMEScience ? #MEscienceWorks?

Oh that would be so awesome, we could all do it, that would be so funny. :D @dave30th there probably isnt but is there a way to make that happen? oooo:) thats a good'un

hang on... is this a negative outcome GET study published in the Lancet? What am i missing?

Looks good, I am in too much of a state at the moment to read it though. Also i bet she'd be interested to hear about CBT/GET for ME (unless of course she's already been 'got at' by the BPSers like Ben Goldacre) perhaps someone might have the energy to read the book & then send her a link to...

Wow... that is... well.... disturbing Eww The article reads like an Amway rally without the saccharin & ra-ra. The more i discover about the SMC the more disturbing it becomes.

Wow that is an excellent lecture @dave30th as always Truly excellent. Thank you

Exactly @TiredSam !! This is what i have been saying for years :banghead: Do they think we are all utterly stupid? even a person with a severe intellectual disability can tell that a bicycle and a horse are not the same thing. I can tell the difference between the experience of... anxiety...

The 'do the same every day' thing has little to do with an appropriate response to deconditioning. As @unicorn7 & @Keela Too said, thats not how genuine fitness training is done. It strikes me that it's all part of their operant conditioning based approach - so it's designed to train us out of...

It's a privilege to contribute, I really hope the target is not only reached but smashed. At the moment i think it's the most productive thing we can spend our money on in terms of donations

Best video i've ever seen about ME. First time i've seen my own experience represented so accurately (the lady with the glasses could have been me, so much so that i cried). And oh my goodness @dave30th i just started crying again when i saw you tearing up. Sendin love across the miles to one...

This thread is so depressing. Valuable, but depressing

Kristin Neff has this whole 'self compassion' thing going on... a book etc, which i've found helpful. And i like the lack of music in her tracks. I really like the 'soften soothe allow' one when i'm upset about something. That dog Eddie was priceless & such a key character. I havent seen the...