Search results

  1. Snow Leopard

    Open (Palmerston North, New Zealand) Effects of exercise at anaerobic threshold on post exertional malaise in individuals with ME/CFS

    I agree with @Jonathan Edwards, the anaerobic threshold is not a magic threshold. The most interesting exercise finding in ME patients is that the ventilatory threshold is reduced on the 2nd CPET. Now the ventilatory threshold is associated with, but not caused by the anaerobic threshold, in...
  2. Snow Leopard

    Open (Palmerston North, New Zealand) Effects of exercise at anaerobic threshold on post exertional malaise in individuals with ME/CFS

    Because it is the most interesting phenomena if we wish to understand the altered effort perception in CFS patients. I agree that this might not be so useful in terms of management... Amongst healthy people and patients with various conditions (other than breathing restricted conditions such as...
  3. Snow Leopard

    News from Belgium

    This is true, simply because deconditioning is not a perpetuating factor for CFS, so increasing exercise capacity is not necessary, nor effective.
  4. Snow Leopard

    Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway…, 2014, Bakken+

    The issue could be that there are biases in diagnosis, basically people with stronger or more regular relationships with their GPs are more able to get a diagnosis.
  5. Snow Leopard

    Who said: 80% of ME is post-infectious

    Do we really know that? The problem is we don't regularly test for Norovirus and we haven't done a prospective study to see if people with such infections develop ME. I think the primary risk factor associated with the infection is how long the infection sticks around for increases the risk of...
  6. Snow Leopard

    Who said: 80% of ME is post-infectious

    The problem is there are many infections out there and we don't have specific tests for many of them. The conclusion isn't necessarily that these cases aren't due to infection, we can however conclude that the specific infectious pathogen does not seem so important.
  7. Snow Leopard

    Bateman Horne Center Online Education Series, 2018

    Yes, I feel the same way. ME/CFS and Fibromyalgia are not the same.
  8. Snow Leopard

    News from Belgium

    Maggie De Block, the minister mentioned, no longer holds the position of Minister of Social Affairs and Health, according to Wikipedia. Google translate quote:
  9. Snow Leopard

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    There were "CFS" (Oxford criteria) patients included in this study as a comparison group.
  10. Snow Leopard

    Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway…, 2014, Bakken+

    I don't think "stress" explains it at all, otherwise the epidemiology would show highest prevalence in high-stress jobs/roles. I believe the early peak is primarily due to increased infectious disease exposure, combined with hormonal changes through puberty. The latter peak, similar, coming in...
  11. Snow Leopard

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    It's not about whether someone is "good" or "bad" (or "BPS", sigh), he's somewhere in between. The problem is he has worked with some questionable people and has been permissive of poor quality methodology as a result - specifically using the Oxford criteria, and the Chalder Fatigue Scale in...
  12. Snow Leopard

    'Widespread and dangerous': Facing medical uncertainty, some doctors tell patients it's all in their heads CNN

    This is what I initially had, but my case was not due to C. Jejuni (I also tested negative to a long list of usual suspects including EBV): https://en.wikipedia.org/wiki/Acute_motor_axonal_neuropathy Chronic fatigue like syndromes are quite common post-GBS, according to the literature.
  13. Snow Leopard

    'Widespread and dangerous': Facing medical uncertainty, some doctors tell patients it's all in their heads CNN

    https://en.wikipedia.org/wiki/Flaccid_paralysishttps://en.wikipedia.org/wiki/Flaccid_paralysishttps://en.wikipedia.org/wiki/Flaccid_paralysis was the first major symptom of my illness. I regained the ability to walk, but other symptoms have persisted. Are you saying I don't have ME or CFS?
  14. Snow Leopard

    A compromised paraventricular nucleus within a dysfunctional hypothalamus: A novel neuroinflammatory paradigm for ME/CFS, 2018, Mackay, Tate.

    They have come up with a variety of novel hypotheses, but they tend to be inconsistent with what has actually been measured.
  15. Snow Leopard

    Australia’s NHMRC ME/CFS Advisory Committee draft report released for public consultation

    The report seems quite reasonable, but the proof is in the pudding so to speak.
  16. Snow Leopard

    Patient: "The latest thinking on chronic fatigue syndrome"

    More from Sally Turner: https://patient.info/health/immune-system-diseases/features/the-autoimmune-conditions-women-need-to-know-about And her blog: www dot sally-turner dot co dot uk
  17. Snow Leopard

    Peak Oxygen Uptake in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A Meta-Analysis. Franklin et al., 2018.

    The meta analysis I'm talking about was at a presentation and I'm expecting/hoping it to be published soon.
  18. Snow Leopard

    Physical Activity and Sleep in CFS and Fibromyalgia Syndrome: Associations with Symptom Severity in the General Population Cohort, 2018, Joustra et al

    And most studies of CFS patients show on average, significantly lower activity levels as well as different activity patterns. CFS or ME patients are not arthritis patients. There is some evidence for different motor control which may be related to both concentration issues as well as the...
Back
Top Bottom