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  1. Snow Leopard

    BBC Newsbeat: M.E. And Me - documentary available from Tuesday 8th May, 6am

    This sounds like the typical modest improvement from initial onset, which usually happens regardless of what the patient does. It sounds like Emma is still ill, unfortunately
  2. Snow Leopard

    AFME provide new self advocacy support material

    The "boom-bust" stuff is total nonsense and not based on any evidence of activity patterns in patients. Certain people like to equate PEM with doing too much, hence boom-bust.
  3. Snow Leopard

    Did the David Nutt SAFFE Xyrem drug sleep study ever publish?

    I don't remember seeing such a study published.
  4. Snow Leopard

    Article and documentary about ME from Finland - Yle Arenan

    Risto Vataja primarily publishes in Finnish, but has been involved in some odd studies: https://tuhat.helsinki.fi/portal/en/persons/risto-vataja(3edeb031-ec17-4c43-b491-61c334c38875)/publications.html "Better long-term outcome for hypnotherapy than for CBT in adults with ADHD: results of a...
  5. Snow Leopard

    Adolescent recovery

    Yes. Even the claim in the primer (of 700+ patients) is not formally published in a peer reviewed journal.
  6. Snow Leopard

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    I guess they can't claim that "perfectionism" is necessarily "mal-adaptive" when it comes to meaningful outcomes now. :facepalm:
  7. Snow Leopard

    Why Bioethics Should Be Concerned With Medically Unexplained Symptoms. (2018) O'Leary

    Yes, this strikes right to the core of the ideas by the likes of Fink and others who want to pool all the MUS into a single category and think this lack of specificity is somehow useful.
  8. Snow Leopard

    Why Bioethics Should Be Concerned With Medically Unexplained Symptoms. (2018) O'Leary

    Cites this "The Sensational Psychosomatic Witchcraft Trials: Evaluating Somatic Symptoms and Initially Unexplained Pain" http://kozachekart.blogspot.com/2016/07/the-sensational-psychosomatic.html Trigger warning: has discussion of violence.
  9. Snow Leopard

    Michael Sharpe skewered by @JohntheJack on Twitter

    Notice how he doesn't answer any difficult questions about his choices or conduct?
  10. Snow Leopard

    Guardian: 'People are scared': the fight against a deadly virus [HTLV-1] no one has heard of

    The virus has likely been in Australia for as long as people have been in Australia... Antiretroviral drugs have been shown to work in vitro, not sure about large clinical trials though. In any event, the key is to get the virus under control before the person develops lymphoma.
  11. Snow Leopard

    Norwegian health authorities classify Lightning Process as alternative treatment

    :emoji_duck::emoji_duck::emoji_duck::emoji_duck: With the rest of the quacks...
  12. Snow Leopard

    The biopsychosocial model

    The development of integrated bio-psycho-social models are a great idea. The problem is that there are no such models. Most research is still heavily siloed into separate bio, social and psych studies and directional relationships remain unproven for any illness or disease.
  13. Snow Leopard

    Norwegian professor on ME and gender dystrophy

    Oh look, one of Ivar Sønbø Kristiansen's recent papers thanks Henrik Voght for insight. https://www.researchgate.net/publication/312664032_Practice_variation_in_surgical_procedures_and_IUD-insertions_among_general_practitioners_in_Norway_-_A_longitudinal_study
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